Your Contribution Needed on Ovarian Cancer Story from Ergin

Dear Friends,

During the past year, this website has grew seriously in terms of number of visitors. Given the type of information discussed here, this website attracts visitors that are well informed regarding treatment options, including medical doctors, scientists, private-clinics owners but also many people like myself, all driven by one of the strongest motivations that a human can have, i.e. to save LIFE (of himself, of a loved one or of a friend). The fact that this website starts to represent a meeting point for knowledgeable people in the oncology field, makes me realize that this may be turned into value for the visitors themselves.

With that in mind I offered to Ergin, one of the visitors and contributor on this website, the option to share his story (including medical history, past and current treatments, etc.) and I will make a post out of it where other visitors can contribute with potentially new ideas. Ergin is currently in search for effective treatments solutions for his dear mom. Please see below his message and if you have good ideas, questions, etc. please contribute by sharing what you have in your mind. Off course, as the disclaimer is also stating, this website is not intended for medical advice but to try and get together as much collective knowledge as possible, so that finally we make informed and successful decisions regarding our treatment strategies.

This offer is open to all the visitors. So if you like the idea and would like to share your story too, just send me an e-mail with the story and I will do my best to publsih that.

Here is the message from Ergin:

Hi Friends,

Thank you very much for your kind words and want to help me Emad, Daniel.
You gave me a breath. Here is our treatment after diagnosis of ovarian ca,primary peritonium.
There was lots of metastasis on periton and there was an omental cake (the final word of cancer doctor said).
But only on periton and around the bowel neighbour to periton.
CA125 was 400, 11 months ago.

1.) Three courses (3 months, 9 chemo) taxane+carboplatin+nerium oleander injections.
CA125 was declined to only 5. WBC never went below 5.

2.) And we stopped chemo and refuse surgery. Only nerium oleander injecitons.
After 2 months past without chemo, CA125 begin to rise upto 95.

3.) We began chemo + iv vitamin C + iv Curcumin + local hyperthermia on abdomen for 2 courses(6 chemo)+metformin.
CA125 declined to 35.

4.) We had to change our doctor because he said we Must do surgery.

We began insulin potentiation therapy for 3 courses (9 chemo) with different doctor.
On chemo days iv mannose + iv sulphur + iv iron + iv vitc + iv vit b complex + hyperthermia + HBOT.
On normal days only pills (2DG + curcumin + melatonin + metformin + artemisinin + beta glucan)

There is no responce after changing the doctor. From first day to last CA125 rised to 57.
Still lots of tumors on peritonon PET last week. I am always thinking about iv curcumin. Is it our drug which works best? I began to use iv curcumin again.
2 weeks past now. WBC were always 2-2,5 range before iv curcumin. Now it is 3,6.
I wonder the results on tuesday (chemo day), especially CA125.

I talked with Dr, he said very surprising! and not good pet result. Now we have to make more agressive therapy.
He is going to use DCA on tuesday. He has Salinomycin and 3bp in his clinic but didnt try yet.
I really dont know what to do. The clinic is 450km far away from us. Everyweek we have to go by car.
There is stg wrong with his protocol i think. They all became resistant. He said he gives low dose chemo but wbc became very low after courses. Ipt potantiates chemo. Last week her blood sugar downs to 30 during ipt. I was really afraid.
Normal blood sugar level is around 100 after we began to use 2DG and metformin.
Before it was around 175.

Daniel and friends. What do you think about our protocol? What is wrong with it?
Is it iron, sulphur, 2DG etc.
Do you think that should we give chance to iv curcumin for one or two weeks before DCA?
Sorry for the quantities of the medicines. I will write them when i learnd the exact weights.

Kind Regards
Ergin

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780 Comments on "Your Contribution Needed on Ovarian Cancer Story from Ergin"

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Meech
Member

As far as I understand, IPT would give your mom exogenous insulin, which would take the glucose flowing in the blood stream and push it into cells, lowering the available amount of glucose in the blood stream. I’m unsure if this is dangerous or not since the cells would still be getting their glucose. I would imagine the dangers of low BG would emerge if there was insufficient glucose in the blood stream to feed your cells in the first place.

Is she getting any of the symptoms of low BG?

Also, I’m on a ketogenic diet, and being fat adapted, my blood glucose has been as low as 50 if I’m remembering correctly, with 0 adverse effects.

I figure as long as your cells are getting some form of energy, then the temporary low BG from the IPT shouldn’t be a massive issue – especially with no side effects, but this is just from my mind and I’m not 100% on if I’m correct here. Someone else should chime in and correct me where they see fit.

chalmj
Member

Ergin,
I don’t know much about ovarian cancer treatments. All I can comment about is what I am doing to treat my cancer because it is working for me and should work for all cancers.

I am a HNSCC cancer patient. In Sept 2016 I started the restricted ketogenic diet (R-KD). I started GcMAF Bravo yogurt in mid June 2016. I strongly urge you to look into these 2 therapies. I don’t want you to take my word these therapies work. You need to take a look at you tube videos from Dr. Thomas N. Seyfried (book – Cancer as a Metabolic Disease), Dr. Dominic D’Agostino (ketogenic diet), Dr. Marco Ruggerio (probiotic GcMAF yogurt), in general information about restricting carbohydrates and calories.

John

faithhope0601@gmail.com
Member

Hello John

Where do you get ur GCMAF Bravo yoghurt from, thanks for sharing.

faithhope0601@gmail.com
Member

Hello John

I am battling ovarian cancer – stage 3 Low-grade serous carcinoma, can you please give me more information on the restricted ketogenic diet, what you include and not in your diet? and where do u buy your GC MAf yoghurt from

chalmj
Member

Yes,
I now highly recommend Dr. Mercola’s new book “Fat For Fuel”. In this book he documents how to implement exactly what I am doing – the use of a macronutrient tracking tool and taking blood glucose and blood keytone readings on an ongoing basis and the foods to consume on the diet.

Here is a video where he outlines the game changing breakthrough on treating cancer from a metabolic approach because it is actually a metabolic disease not a genetic disease.
http://articles.mercola.com/sites/articles/archive/2016/08/07/cancer-metabolic-disease.aspx

Here is a mouse study that concluded certain probiotic strains can shrink tumors as effectively as the new PD1-PDL1 immunotherapy drugs.
https://news.uchicago.edu/article/2015/11/06/gut-bacteria-can-dramatically-amplify-cancer-immunotherapy

My HNSCC cancer continues to regress and I am now more confident than ever that I have been blessed with finally, after many years of searching/ researching, in finding a treatment strategy that works.

GcMAF Bravo yogurt is available here:
https://www.marsvenus.com/p/gcmaf-bravo-probiotic-yogurt

The government is doing all they can to hide GcMAF, even retracting Dr. N. Yamamoto’s peer reviewed scientific studies already published on GcMAF. Keep in mind most of these studies were associated with injectable GcMAF. I guess it was Dr. Ruggerio who somehow changed the game and found a way of GcMAF oral administration.

The diet is needed and should be used by all cancer patients. If we continue to feed the cancer how can any treatment be effective? But I am now confident it is the yogurt that is actually shrinking my tumor.

I see in my research now that the conventional world is excited about immunotherapy as they are having great success with the latest immunotherapy drugs. I think everyone now agrees the immune system is capable of eliminating cancer if we can get it to see the cancer cells. I think the yogurt does this as well as the latest immunotherapy drugs and with no side effects.

John

Meech
Member

Hi John,

About the Keto diet that’s Dr. Mercola and a few others are very high on:

I’ve been on the diet (though not calorically restricted) for over a year now and my observation, along with many other people, is that my blood glucose has actually increased. Even during fasted states, my BG is very frequently 5.0-5.5, when it used to hover around 4.5 while I was on a SAD.

This has perplexed me for a long time. I started looking around and noticed a ton of Keto dieters experiencing the same thing. So I’m not 100% sure how effective the diet is if you aren’t implementing caloric restriction. For me, CR is difficult because I’m already very lean genetically. It’s much easier to do when the patient is overweight. Here are some articles on it:

http://www.paleohacks.com/ketogenic/the-high-blood-glucose-dilemma-on-low-carb-lc-diets-14400

https://www.google.ca/amp/ketopia.com/high-blood-sugar-in-ketogenic-dieters-plus-a-special-surprise-hint-genotypes-and-metabolism/amp/

chalmj
Member

I checked out both links but not sure I have an good answer. I don’t see either article getting into protein restriction. The restricted ketogenic diet has a restriction on protein as well as on carbs. Our liver turns excess protein into glucose so if you eat too much protein your blood glucose goes up.

I am not seeing this problem. My glucose is in the low 80’s and high 70’s most of the time but I do see 90’s sometimes and even into the low 100’s sometimes when I misbehave and eat too many snacks the day before (whipped heavy cream with 85 or 90% cocoa chips mixed in, pork rinds with cream cheese, macadamia nuts, baked cheese bites).

When these high blood glucose readings are seen I wonder what are the blood keytone readings? They don’t mention that is the articles. If I eat too much protein the next day my ketones have dropped and glucose is higher. Are you able to measure keytones when you see high glucose readings?

I recommend Dr. Mercola’a new book “Fat for Fuel” . He talks about the most common causes people may fail implementing a ketogenic diet. One is that they don’t use a macronutrient tracker, another is that they are not measuring blood glucose and blood keytones.
John

Meech
Member

I will check out the book, thanks!

My only issue with the protein argument is that protein seems to have a fairly minimal effect on blood glucose. Meat products theoretically have a glycemic index of 0. I’d understand if somebody was consuming 250g of protein per day being knocked out of ketosis or having their blood glucose increase, but theoretically (and in practice really), if you were to measure your BG prior to an all-meat meal, and after an all-meat meal, the BG should be exactly the same or maybe a touch higher based on gluconeogenesis.

Another thing is that I’m getting these 5.0+ readings while I’m on Metformin.

I think the issue may be deeper than protein. I think the issue is some form of insulin resistance. Likely not pathological, and likely reversible. If I was getting lower readings while on a normal diet (high carb) then I have a hard time believing that protein would have a bigger effect on blood sugar. I think that insulin is not being secreted in the quantity or with the timing that it should be. If this is the case, then IGF positive cancers still stand to benefit from the diet.

chalmj
Member

Meech,
That is pretty interesting. 5+ (in the 90’s) and on Metformin. Do the docs give a range they think you should be on the Metformin? What is the blood keytone reading when you get a 5+ glucose reading?

Excess protein gets converted in the liver(gluconeogenisis) to glucose. It may not happen right after a meal. It might take more time for this to occur but I’m speculating, I don’t know for sure. If I eat too much protein I do see higher glucose readings the next day. My goal is to keep glucose readings below 80 and ketone readings above 2.0. My target for carbs is 20g/day and for protein it is approximately 50g/day. I have to use a macronutrient tracker to achieve these targets.

The real purpose in a low carb, moderate protein, high fat diet is to lower blood insulin levels by lowering blood glucose levels. Cancer cells, actually all cells, can only get glucose into them through their insulin receptors. Cancer cells have 100 times more insulin receptors than normal cells because they need 100 times more glucose to survive and they need it constantly. Lowering Insulin is the key mechanism to weaken and even starve cancer cells with a ketogenic diet or fasting.

Insulin resistance is associated with high levels of insulin and even at high levels cells can’t take, refuse to store, any more glucose. The answer is to change the diet and eat less glucose producing foods. It amazes me that doctors prescribe insulin injections for diabetic patients when it is just the opposite of what they need which is to lower blood glucose and therefore blood insulin levels.

Dr. Mercola, in his new book Fat for Fuel goes over issues they may cause problems with ketosis. He goes into detail how to implement the diet effectively. If an individual has cancer and wants to effectively implement a ketogenic diet this book is the definitive guide.

John

I

chalmj
Member

Meech,
When I first got cancer I was 175 lb, down for 185 lbs when I was still working. I dropped to 145 lbs after getting cancer and it stayed there at least 2 years. In Aug 2016 I decided to fast. Next thing I know I dropped in that 1 month down to 126 lbs. I was so thin at 5′ 10″.

So I realized for me – no more fasting. I was losing muscle mass/ lean body tissue. I was concerned. Dr. Mercola stated – don’t lose your muscle mass as older individuals may find it difficult to get it back.

So that when I started the ketogenic diet in Sept 2016 I was 126 lbs. I was able to get back to 145 lbs in about a month or 2 eating excess fats. I call it the miracle period for me. The gain was not in fat. Seemed more like muscle.

The point I am trying to make that if you are lean fasting may not be appropriate, I couldn’t do it anymore but I am able to maintain and even gain weight on the ketogenic diet.
John

anna
Member

Dear Ergin,

Why are you against surgery? Are there any reason for that? Could they get all the cancer during that surgery ?

Alex
Member

Sorry Ann, but me and my mother both regret surgerry. The surgerry may have helped buy some time, and that may be the gift of it.
But we lost part of the right lung, the surgerry was massive, i got the best surgeon team in the country i could get for my mom, from the military and academia, spent all our savings on these efforts and others, we were scared and did everything as fast as we could and as best as we could in hope that that will be all, only to see one month later in the CT scan report that she now has a similar size tumour somewhere else. And tumour residue at the place of origin. (hospital exist paper said “we got it all”). This is part of our true story.
They were rushing us into chemo, seeing how my mother is in very very bad shape i told my mother that we need to take some time away from the mess.
If anything i wish we would have gone with some sort of sound beam that would boil the tumour. I don’t know if anyone has any experience with that but sound better than surgerry.
A video about this cancer problem that i wish to share. https://youtu.be/D7hfxSmzYkA – Wonderful man.
I now wish to save my mother with alternatives that will help instead of do damage. Just as everyone else here. Any help or suggestions will be much appreciated.

Best wishes to everyone and warm huggs.
Alex

Ergin
Member

Thank you very much Daniel,
Words cannot be enough to say you thanks.And friends from all over the world.
I have been searching too much for only photo thermal therapy.So i am lost i think.I didnt see the results just near us.

Meech,Thank you very much.We trusted too much to our Dr.But in 1st week i began to think there is stg wrong with his protocol.But how can it be?He has good name in my country.He is the only one who uses ipt,hbot and other iv’s.After a friend past away from cervix cancer(we went to the same doctor)i began to think about ipt and the others.

John very interesting, thank you for advice.I am very happy to see the good results on you.I will all search it for tonight.Now we are on a modest ketogenic diet.May be it slows the progress.But with HBOT it may work better(i think).Tomorrow i begin to hbot again.I know a doctor who also thinks like that.First you have to clean the bowel from fungus,he says.

Daniel i see very good results for some patients complete responce with CHEMO+ iv curcumin+iv vit c.But now i am beginning to think that did they use +dca or not.
I buy curcumin from a hospital in Turkey not German.I dont know the origin but ill learn and tell you.The size of the particles also.Very expensive,slows us down.We use 450 mgx2 per week with iv vitamin C.
I am afraiding to use DCA.Because i cannot find any doctor to give us iv.I have pills of DCA but havent try yet.I saw a very bad side effect with a patient who used pills everyday without any off.
Yes the same chemos during ipt.We take 8 courses(24 chemos). in 1 year.
Do you think that we have to change chemo?
Here is our gene sequencing results before ipt.
braf mutations:no
kras mutations:no
TP53 3.2%
TP53 93.9%
KIT 2.7%
PIK3CA 12.0%
SMAD4 6.2%
PTPN11 A 3.0%
I wonder now how do they change.
Do they give us stg ?I am not sure.
But i want to send the blood again and write you the results.
Kind Regards
Ergin

chalmj
Member

Ergin,
Actually HBOT therapy is discussed by Dr. Seyfried in his videos as an adjunct to metabolic cancer treatment. I was considering renting one, I think it was a couple hundred a month, based on his videos. Watching these videos, I became convinced most treatments like HBOT would be more effective if the cancer cells are first weakened by diet.
If you get the time I urge you to take a look at the videos. It might change your mind on what is most effective as a cancer treatment.
John

faithhope0601@gmail.com
Member

Hi Ergin

I am battling ovarian cancer stage 3 c and did 6 rounds of IPT – Taxol/carbo but my cancer is grade 1 and type being low-grade serous carcinoma, in general, these tumors don’t respond to these chemo drugs but I was also using high dose THC at this point and my tumors were shrinking, once I stopped the oil my tumors started growing again . I have also done the RGCC test to see what herbs work on my cancer but not sure how accurate these tests are. I hope information i shared here is of some use for your mom .

Masato Hada
Guest

Dear Ergin,
I recommend the drugs that are approved by FDA even for benign diseases. Despite in general industry is not particularly interested in funding the clinical development of thalidomide, celecoxib , valproic acid.
In my experience, I have treated the patients with ovarian cancer as follows with good efficacy.
1. thalidomide 200mg, celecoxib 400mg /day and metronomic gemcitabine 1000mg/week.
2. thalidomide 200mg, celecoxib 400mg, valproic acid 600mg /day and metronomic gemcitabine 1000mg/week.
3. thalidomide 200mg, celecoxib 400mg, solafenib 200-400mg /day and metronomic gemcitabine 1000mg/week.

Reference
Antiangiogenic Cancer Therapy CRC Press Edited by Darren W. Davis, Roy S Herbst, James L. Abbruzzese page316 (222)

Ergin
Member

Dear Dr Masato Hada,

Today i think too much and have found that it is improper about requesting from you to be our doctor in a public place.You have good name in the world,and we know the cancer.Everything can be change up to person.But if you can help us i would be very happy.

Kind Regards

Ergin

Alex
Member

Dear Dr Masato.
What is your best line of suggestions for treating Lung AdenoCarcinoma?
Thank you very much for your help.

Regards,
Alex

Masato Hada
Guest

To Mr Alex,
I usually treat the lung cancer patients with distant metastases with thalidomide, celecoxib and low dose cytotoxic drugs (docetaxel, gemcitabine, irinotecan, vinorelbine and so on).
Please read my article
A case report of chemotherapy with thalidomide, celecoxib and gemcitabine in the treatment of patients with brain metastases from lung cancer
http://www.rogueorgan.com/articles/brainmeta.pdf
Hada Clinic
Masato Hada from Japan

Ergin
Member

Dear DR MASATO HADA,

Again thanks for your help to us.
I have 2 questions,if you could answer,i will be very happy.
1-Can we use thalidomide with avastin?Unfortunately i cant say doctor to stop avastin,already he hates me because of too many questions.
2-Do you have any experiences about mebendazole or derivatives.
Because when my mother begins mebendazole and stopped all other treatments,bowel obstruction relieved in a very short time.
Kind Regards,
Ergin

Ergin
Member

Hi Daniel,
A very good question,thank you for correction.
I always forget to write metformin and lansoprazole.Because she was using them from lots of years.(Still using)
She stopped citric acid+HCA+DCA and LEVOTIRON***.
Today she begin itraconazole+diclofenac+celecoxib with small dosages.
Kind Regards
Ergin

Masato Hada
Guest

To Mr Erigin,
My answers.
1-Can we use thalidomide with avastin?
When we understand the mechanism of Avastin, I think the drug is not effective to all cancers. Because it works on the outside cell receptor, it does’nt act on the VEGF production directly in the cancer cell. The response rate of Avastin is very low (only a few %). Thalidomide works in the tomor cells.

2-Do you have any experiences about mebendazole or derivatives
I have no experience.
To Mr Erigin,
My answers.
1-Can we use thalidomide with avastin?
When we understand the mechanism of Avastin, I think the drug is not effective to all cancers. Because it works on the outside cell receptor, it does’nt act on the VEGF production directly in the cancer cell. The response rate of Avastin is very low (only a few %). Thalidomide works in the tomor cells.

2-Do you have any experiences about mebendazole or derivatives
I have no experience.
Kind Regards,
HadaClinic
Masato Hada from Japan

Alex
Member

Thank you very much dear Dr. Masato.
Sadly i wouldn’t be able to travel with my mother to Japan for such treatment, i could try and make an effort, but to be quite honest the article linked by you does show most impressive results, they do not show complete remission sadly, perhaps the reason we are all here, trying to find better treatment solutions.
I am wondering what else you feel would be beneficial for my mother’s post-surgery adenocarcinoma of the lung with horner’s sindrome, spine invasion, renal glands suspected and now missing right upper lung.
What do you feel would be the most effective alternatives also any specific testing you recommend.

Thank you again very much.
Alex

Ergin
Member

Dear Dr Masato Hada,
Thank you very much for your help.
Our family are very confused after getting your answer.We began to search your protocol and we see it suits to us.
Her blood counts are good enough to tolerate.We are confused because she takes lots of medicines.What should be our
protocol for her.Eliminate some of them or add more?Are they concomitant?
And how can we find a doctor here that accepts this protocol and folow our treatment.We need your assistant too much.
Because may be we have to change the doses later.If you accept us as our doctor, I and my family will be very thankful to you.
So we can make here a real human clinical trial and can help people who suffers from cancer by your help.
Kind Regards
Ergin

Ergin
Member

Hi Ann,
We have hundreds of metastasis on periton.I dont believe that a surgeon can clean all of them.
After i saw a video, i totally refuse surgery because we have no ability to do this surgery for now.

http://www.photonics.com/Article.aspx?AID=48455

Now we are working on that technology,it is not so hard to try it.But months needed.

And my mother is too weak like a child.She has a diifferent soul that i cannot explain with words.If we say her that you ll be on surgery tomorrow,we can loose her that night.

Dont you think that we can survive her without surgery?
I really wonder this situation,if we make surgery and after 3-5 months later reccurence happens.What will we do?The same treatment but NOW more hard to survive.
I need your comments especially on this surgery situation
Kind Regards
Ergin

Ergin
Member

Dear Daniel,
You are really an amazing person.Your words and thoughts made me come to my self everytime.
When i see low dose chemo i like it very very much and jump on it,. And at home only pills,perfect.
But we are not sure if normal dose chemo without iv curcumin or ipt?we dont know if it works or not.
And with dca or salinomycin or iv curcumin or both of them.We have to wait for Dr Masato Hada’s protocol for
some time.We have to give chance to our recently treatments first.I wonder Dr Hada’s commenrt.They are very important for me.Because i trust his protocol.

Lets come to CURCUMIN IV.
I see that,i have talked like i am selling iv curcumin and very sure that it works and cures.I am sorry about that.I only see the people
in the previous hospital,not clinic.Our Dr was Prof Mutlu Demiray,.(we have to leave that hospital because he said we must do surgery)You meet people while getting treatment there.I have never seen a bad situation there.And very good results.Most of the patients were recurrence.(complete responce is a wrong word.forgive me).He is using DCA iv in that hospital but as i know he never use DCA to my mother.
The patent of iv curcumin belongs to martek(an organization of government) and Medicana hospital.,as i know.
450 mg costs 500 usd. That means 4000 usd per month.Very very expensive.

And lets come to our latest doctor who gives ipt.
I dont want to give his name to you in public place,but he has no idea to use 3bp or salinomycin.But he has in his clinic.
Today we didnt go to his clinic.And didnt take chemo unfortunatelly.But i dont want to loose him.
As a summary,both doctors are very far from us.Now i want to take treatments in our city.Is the hyperthermia really important?
We go there only for hyperthermia.I can give chemo+others here.
But finding a doctor is nonsense.I go every doctor,they refuse us.They only give chemo.I am not brave as like as Emad.
If i am brave,my family doesnt trust me without a doctor.

Kind Regards
Ergin

Ergin
Member

Dear Daniel,
Thank you for your searching.You really give lots of time for us.
A father of my friend past away after using continious DCA without any off.For 2 weeks if i true remember.
But he was very late stage and didnt tolerate.May be not because of DCA .But we always afraid after very bad happening.
And now his DCA is in my home.How can i use it?What should be the beginning dosage?
Do you think that it may works alone for ovarian ca?
Kind regards
Ergin

Meech
Member

If it’s any comfort to you, I’ve been on continuous oral DCA for nine months now at a relatively high dose, without days off in between (a few days off here and there if something came up, but nothing regularly.) and I have had no adverse effects that I can point to.

The main known effect is peripheral neuropathy, which is generally reversible with a break from treatment, like Daniel alluded to.

Meech
Member

I wouldn’t use it as a standalone therapy. In mouse models, combining it with Metformin has been shown to increase the efficacy of the treatment as opposed to either drug as a standalone. I believe there are other supplements that can help potentiate it but I can’t speak on them with certainty.

Ergin
Member

Dear Meech,
Thank you again for your valuable answers.
She also takes 2DG + Metformin.
May be i have to cancel 2DG.
What do you think or do you have any idea about 2DG?
Kind regards
ergin

Meech
Member

I’ve taken 2DG in the past but it’s proven to be too expensive for me to maintain.

My only issue I had with 2-DG was if I drank it too fast, I would get really light headed and exhausted and pass out. I assumed that this was because I’m on a ketogenic diet, and the brain uses glucose preferentially, so drinking it too fast would cause the brain cells to take the 2DG as if it were normal glucose and end up with a false fuel causing symptoms.

I’m not sure if this was the reason but it was my best guess.

Apart from that, I’m not sure what the efficacy would be because I never took it for long enough increments but theoretically, I always liked the idea of it. If cancer cells can take up a glucose derivative during PET scans, I always assumed that 2-DG would work in a similar way.

Alex
Member

is the above still true?
Results? Feedback?
Thank you

Meech
Member

Hi Alex,

Yes, I am still going with it. The only days off I take are days where my nephrostomy tube has issues and creatinine goes up a little. The creatinine issues are always unrelated to the Metformin and DCA.

I have slight neuropathy in my hands and feet. If I crouch too long for example (longer than like 30 mins) or keep my hand in the same position while holding my phone for 10+ mins, they start to go numb.

BUDWIG-BERKSON-HALABE
Guest
BUDWIG-BERKSON-HALABE

I’ve been reading a lot on your website… all the protocols, so many good treatments… but as i read, and i know you are not a Doctor, i see how lost any person can get with all this kind of information. I am a doctor myself and i believe people are getting confused here… too many treatments… too many approaches… what would you rather do? cytostatic or cytodinamic treatment of cancer?… you discussed both, and again people get lost, i understand you are not intending to treat. But for all the people out there… I will not get into the discussion of why not use this and that because we need to keep it simple, simple solutions to a very scary disease… a metabolic disease… first understand this! There are 3 people that have solved this for us: Citric acid treatment (Dr. Halabe, México)very fast acting substance, Dr. Jhoanna Budwig (Budwig diet)for life(works best without chemo/radio), Dr. Burt Berkson (Low dose naltrexone///IV-per os alpha lipoic acid)…. Budwig diet for life. Study these protocols, don’t get lost. Even if you don’t know what to do.. start with these 3, very easy to follow, you don’t need much money, great outcomes. Qué Dios los bendiga!

Ergin
Member

Dear Sir/Madam,

You are totally right.All of us want to switch to those protocols.Nobody wants to take chemo.
Here,you can not find newly diagnosed cancer patient.They go to doctor and take chemo only.All of us are recurrent.Do you think that a patient has 1-4 months to live and try ONLY those protocols.This not realistic.Because of it,we always add stg to our protocol.
We dont have too much time to try different things.I have learned lots of things from my friends in this website.
Can you take the responsibility and say me to switch to those protocols and reject chemo?
And you will see how this conversation help people at the end.
Most importantly we should think twice before writing here.Your writings will be online forever.

Kind Regards
Ergin

Ergin
Member

Dear Friends,

I forgut to say thanks to Dr. for his comment.We need every idea to make discussion.
I am totally near Daniel about this situation.I dont think that there is a knowlodge pollution here.
If you are able to read my past treatments,you can take lots of data from there(good or bad,it is feedback).It depends on patients how to use this data for themselves.

As you see,we first give chemo with nerium oleander and amazing results we got.After stopping chemo CA125 declined to only 11,
and 1 month later it became only 5.Then injections are working we thought.She had 38.5 degrees centigrate fever and strong pain on tumors after injections.But 2 months later markers began to rise.
I will never know if nerium oleander injections works with chemo or not,but alone doesnt work for us after 3 courses(18 chemo).Or if we used only nerium oleander injections at the beginning of diagnosis without chemo.May be low dose chemo for Treg depletion+ injection works.I always think this but never know.There is a legend here that it cures lots of people if you use at the beginning(no chemo).It makes WBC upto 18-20.Our WBC were always higher than 5 during chemo cycles but never see more than 8.
But now we cannot use it.After stopping injections more than months, you can not take it due to great reaction and allergy.
And very bad side effects on injection sites.
I think it may help some patients who are going to use.
Tomorrow i take blood counts and give iv curcumin.(Last chemo 18 days ago)
I will write the results.
On friday we are going to begin DCA orally and try it for 3 weeks without chemo.

Kind Regards
Ergin

Ergin
Member

Hi,
It doesnt work it says spam.Can you help please.

Ergin
Member

Hi Daniel,
I hope it works.I make you tired for my messages everyday.

Ergin
Member

Yes it works.Thanks alot
Nerium oleander,it was our hopeful dream.We began injections to 4 patients.
Cervix,ovarian,colon,lung.Only cervix and ovarian(mother) responded well.Because newly diagnosed and begin with chemo.
Colon ca and lung ca patients took more than 20 chemos for 3-4 years (all recurrant).
You have to set the doses for 38,5 degrees cerntigrate.They use max dosage of 1 ml injection, and their fever didnt rise more than 37,5.But some WBC improvement.They both passed away after 1 year.
One of them who passed away, gave me the medicine without any cost.He was pharmagist and does medicine at home.He builds a system i never see.
But It is patented and lisenced in USA i think.But dont know the brand.
In Turkey there was people who died after eating or boiling and drinking nerium oleander after the oleander CURE news on tv.
PLEASE NEVER TRY IT AT HOME.Really poisonous.
They used it firstly for skin cancers as a creamlike substance.That was before we borned.

For my mother we began with chemo.In the beginnings fever goes upto 39C with only 0,3 ml injections.
Later we have to make higher doses to reach 38-38.5.You have to find the right dose elevating by 0.1ml each day.
Every day except chemo days we used injections.Than we came to max dosage after 4 months but it didnt rise above37.5 although we stop chemo.
Than we began to B-glucan and suddenly fever goes above 38,5.But interestingly not everyday.2-3 times per week goes upper.

After a pet scan result we go back to chemo with curcumin vitc hyperthermia.Then you know the history.

My thoughts about Nerium Oleander:
It is not a late stage medicine especially who treated with lots of chemo.But if you are mesothelioma etc and never get chemo,may work.May improve survival.
Or may work with low dose chemo,who knows.I dont think is there any clinical trial or not but this is our story.
NOTE:There are lots of clinics who uses whole body hyperthermia and never rises above 38.Local hyperthermia yes they maybe arise but not more than 38.5C.
Kind Regards
Ergin

Ergin
Member

Hi,
I have very different news today.I got the blood counts and very excited.And i need help.
The CA 125 is declined to 21.What does it mean?My brain stopped working.
We got chemo nearly 18 days ago.And we use only iv curcumin and iv vitC+pills as you know.
No HBOT no hypertermia.Only KD.
What must we do from now on?Do you have any idea?
May be 45 days ago she was flu and ca125 rised because of that.And now slowing down.But there was litlle progress on PET!!!,
It must be more than 35(we begin ipt with 35)
Can curmumin iv with iv vit C works without chemo?
Can chemo work more than or after 2 weeks?Or chemo worked with curcumin but ca125 is declining now?
Tomorrow i am going to begin DCA.But will i give chance to iv curcumin+iv vitC alone for 1-2 weeks?
Or DCA+iv curcumin+iv vitC
Or chemo+DCA+iv curcumin+iv vitC
Yes there is stg positive but do you think that we have to make more agressive therapy,to fight with all weapons.?
Please neeed your kind comments,to all friends.

MEECH i talked with a doctor today and told me that DCA+2DG works perfect.You were right.Again thanks.

Kind Regards
Ergin

Ergin
Member

I think the most important question we have to know is:
How many days can chemo work after administrated?
If we can learn this,the problem is solved.
And i dont want to make iv curcumin sellers rich with incomplete data and my half knowlodge..Everyone can not buy it.It is very expensive in everywhere.
If it really works ,later we can talk about how we can produce it at home,or find cheaper versions.
Does anybody knows someone who didnt respond to iv curcumin?I wrote our gene sequencing results,May be we can compare each other.
Or we can compare the products ,the particle sizes etc.
I know it sounds fantastic but not impossible.
Kind Regards
Ergin

Ergin
Member

Hi ,
We begin dca tonigh with 600 mg.She is 53 kgs.

Ergin
Member

Please i need your advice firends.
Daniel,is it stg wrong with your website?
I feel like talking myself and answering.

Emad
Member

Hi Ergin

I have been following this article all the time , I don’t really have enough information to share

but regarding some of your questions

about how many days can chemo work after administration , in case of my mother :-

chemo will work for 3 to 4 weeks maximum , usually the markers will try to rise quickly ,but of course chemo with DCA (not alone)

and the other thing , I heard that DCA is usually combined with IV vitC , Dr. Akbar Khan from Medicor cancer center talked about possible synergy between DCA + IV Vit C and also with KD

600mg = about 11mg/kg , its a good dose to start with

you can rise gradually , you don’t need to rise more than 20mg/kg , the side effects may increase

don’t forget the B vitamins to reduce the chance of neuropathy

DCA should be a very good weapon if used with other strong treatments and with chemo

to me , DCA was always my favorite , also it depends on the source your are buying from

————

I don’t think that something is going wrong with the website , nobody is here since yesterday , maybe because its the end of the week , Danial maybe traveled , not sure

Emad
Member

chemo will work for 3 to 4 weeks maximum , usually the markers will try to rise quickly AFTER THAT

sorry for my wrong typo

Ergin
Member

Than you Emad Daniel.
I want to talk abut necrosis and immunoteraphy.I also think like Daniel that oleander works on necrosis.
While i was searching for necrosis and immunoteraphy,i have found a great article that cure mice.
They heat only 1 tumor with laser and necrosis occurs.There are lots of enzyemes release
.Then they inject chitosan into tumor.So the enzyemes go to the other tumors by the help of chitosan.
But they use low dose chemo to deplet Tregs.
If immunity occurs,it will be impossible to make those mice that type of cancer.
Because of this i gave my 11 months to search for necrosis and photo thermal teraphy.
I have talked with that company for lots of months.They want to make clinical trials in Turkey.
Although i have good relationships with government and hospitals because of my job,we couldnt begin clinical trials in Turkey,
due to regulatory requirements.
Now they are making clinical trials in Peru on 50 patient.
They cured some breast cancer patients,YES CURE. before this Peruvian trial.
It is called InCVAX.

So,if nerium oleander works by necrosis.And for all of the tumors.Then it is perfect but what about tregs?Low dose chemo?
But it also supresses T cells.And chemo causes oleander not to work.
But what is the mechanism?We have to search more.

Ergin
Member

Dear Friends,
We gave 600 mg dca yesterday night.The blood sugar became 85 in the morning .Was always around 100.
So i gave her half of metformin today.500mg morning,500mg night.Is it wrong?
And 2dg ofcourse.
May be you have talked too much about DCA but sorry for asking about it.I couldnt find the sources here.
She drank 2 lt water.No tea for 2 weeks.I cannot give half of DCA ,300mg x2 because powder inside capsule.
As i read if no caffeine added to diet,the chance of working of DCA slows down.If you begin with cafein there is a risk of
Tumor Lysis Syndrome (TLS).And vitB1 2x 500mg.
Then when will i switch to caffein,and 2x600mg DCA?

And i can see we are going to Dr Masato HADA s protocol slowly by slowly.I really begin to think low dose cyclosphamide.
Also InCVAX they use same.

Ergin
Member

Blood sugar become to 75 although we gave half dose metformin.Today 500mg x 1 i am going to give.
We gave her 2DG 500mg X 2.fOR 3 ,5 MONTHS.
You are right may be we have to reduce some of the drugs.

Tanya
Guest

Dear Daniel,

My most sincere condolences and deepest sympathy for the lost of your wife. You have done a great work for all cancer patients. We need your Foundation to have a glimpse of hope going through this terrible life experience of having cancer.

Also I want to thank everybody for sharing your experiences here.

I have advanced clear cell ovarian cancer and going through the frontline chemo. I have two young children. Clear cell is known to be resistant to chemo and has a bad prognosis. I am willing to try different alternatives and willing to share my experience too.

Ergin,

I am really sorry you and your mom have to deal with this diagnosis. Surgery is strongly recommended in ovarian cancer to reduce a tumor burden and make chemo more effective. You have to really decide if surgery would be advisable and beneficial right now for her. Low dose cyclophosphamide sounds like a very interesting option. Is there any possibility for her to be enrolled to a clinical trial? Please update us on your mom situation.

I really want to try salinomycin. I am thinking to use salinomycin monosodium salt. Would Emad or anybody share what to use and how to make it an IV form? I think the protocol is every other day for 2-3 weeks.

Thank you very much.

Tanya.

Ergin
Member

Dear Tanya,
I am very sorry that i hear about your diagnosis.And very sorry for my poor language.
But
I always belive in placebo.Laugh every time if you can.In all clinical trials there is placebo effect.
First belive it.Believe that you can win .I very believe it after meeting friends here.You can learn lots of things here.
There are lots of expert here more than me but also i am trying to give all my experiences to all patients.
We begin DCA 5 days ago.And there is pain on her tumor places begin .That sounds good to me.And ca125 is still 21 after 1 month chemo past.

If you can wait for 15 days,i can tell you the latest results,without chemo.We are going to begin chemo after that,if needed.
But we dont know if she is platinium resistant or not.
What is your CA125?Can you follow it from ca125?Any Surgery?
May be DCA makes chemo to work on you.
Tanya,I think Emad is going to begin salinomycin salt version in 1-2 weeks. He is a perfect man that who gave promise to help patients,just like Daniel.You can wait for him if you wish.
Kind Regards
Ergin

Tanya
Guest

Ergin,

Your English is fine. English is my second language too. It is great that your mom CA 125 is only 21 one month post chemo. Please keep us posted.

After researching this disease for months I developed my own treatment philosophy. My cancer is a rare type and responds much worse to conventional treatment than other type of ovarian cancers. I do not want aggressive convention treatment if there is no much benefits to it. That is why I refused my oncologist advice 3 times and had to find another doctor.

Please do not disregard your oncologist advice completely because there may be some good results with conventional treatment with your mom’s type cancer. I think the best approach is to combine conventional and alternative together to fight this disease.

I had 3 cycles of chemo, then less aggressive surgery than was offered by my 1st oncologist. I have 2 more cycles of chemo to finish frontline treatment. Will see my doctor tomorrow. If my CA 125 is not good I consider adding DCA. I am taking metformin, aspirin, melatonin, Avemar, Pectosal, and was taking cimetidine before surgery.

I am also very interested in salinomycin and low dose cyclophosphomade. I researched oleander and was not impressed with it. One reputable homeopathic doctor strongly recommended me to start mistletoe therapy after I am done with chemo. I will try it.

I live in US. I think a have a pretty good understanding what conventional medicine can offer for ovarian cancer. There are non chemo options like parp inhibitors, targeted therapy, hormone inhibitors. There are also some very interesting vaccine and oncolytic viruses trials in US and in Europe.

Where are you from?

Tanya

Ergin
Member

Dear Tanya,
I am from Turkey.I and my family have choosen a way without surgery.But always we are thinking about it.I always wonder the end and sometimes cant sleep.Because i took too much responsibility about her.But never loose hope.
Firstly we believed to oleander too much and lost lots of months on it.But i know there is something special with it,but without highdose chemo.Misseltoe is not same.There is no tumor pain after using it.

I searched too much for clinical trials chemo and surgery alone.And didnt like the feedback.
If i knew salinomycin,iv curcumin etc at the beginnings i had exactly choosen the surgery.She had omental cake and hundreds of metastasis,and was very late stage when diagnosed.And surgery makes patient weaker.She is 70 years old.
But now if we see the chemo is still working,do we have to think about surgery?
And for what time it is going to work?She took 24 chemos.

Tanya
Guest

Ergin,

Sorry for delayed response. All I know that frontline treatment (surgery + chemo) put about 80% of women into remission and you can be cancer free for some time. It is more difficult to go into remission without surgery.

I refused surgery in the beginning and only agreed to it after 3 cycles of chemo. I still don’t believe that surgery was beneficial for me. I agreed to it because I wanted to be eligible for clinical trials. You mom’s case is different.

Ovarian cancer surgery is sometimes called “the mother of surgeries” because it could be extensive. Also I read that surgery is less effective after 6+ cycles of chemo. I would discuss it with your mom’s oncologist to see if she is a candidate for surgery.

Tanya

Ergin
Member

Dear Tanya,

How are you?What are the latest results?Have you got ca 125 results?
I wonder in the begining and now after chemo.I hope it is declined like you wish.
Did you ask DCA to your oncologist?,there are some very good results on it in internet combination with chemo.
I hope and hope and hope i will give you good results about DCA on this saturday.
Kind Regards
Ergin

Tanya
Guest

Ergin,

I have been talking with Daniel about Salinomycin protocol. I will let everyone know how it goes if I decide to do it.
I will definitely try DCA sooner or later. My oncologist won’t know anything about my experiments. The oncologist can refuse to treat you here, in US, if you try to deviate from standard of care.

My CA 125 dropped from 40 to 7 after 3 cycles of chemo and went up to 9.4 after surgery. I can’t rely on CA too much with my type of cancer. I will have a scan in 3 month after I am done with all chemo.

I am determined to try other options before I have to do a 2nd line of chemo.

Fingers crossed for your mom and the results on Saturday.

Tanya

Tanya
Guest

Daniel,

I have tried to register on your site twice and never got an email with a password.

Thank you.

Tanya

Masato Hada
Guest

2016.12.28
Dear Tanya, Daniel, ergin
From the recent reference below, I think you can find the way of treatment.
Arch Immunol Ther Exp (Warsz). 2016 Dec;64(6):463-483. Epub 2016 May 28.
Transcription Factor NF-κB: An Update on Intervention Strategies.
Panday A1,2, Inda ME3, Bagam P4, Sahoo MK5, Osorio D1, Batra S6,7.
https://www.ncbi.nlm.nih.gov/pubmed/27236331

Like breast cancer, ovarian cancer is derived from epithelial origin. NF-κB acts as biphasic regulator in ovarian cancer, as it plays a role as a tumor suppressor and induces apoptosis but it can be reprogrammed and act as oncogene in chemoresistant ovarian cancer cells.
The critical issue in ovarian cancer treatment is the resistance to platinum-based chemotherapy, and NF-κB acts as a key regulator for developing this resistance and thus attributes to the aggressive recurrent ovarian cancer.
Since NF-κB promotes angiogenesis and is involved in cancer progression, it acts as a major target for the therapeutic purposes. Various pharmacological substances like thalidomide, celecoxib, gemcitabine, cisplatin, doxorubicin,
genistein, bortezomib, sulfasalazine and others either alone or in combination with radiotherapy or other pharmacological agents have already entered clinical studies and show promising results to treat various types of cancer (Hada and Mizutari 2004; Heinemann et al. 2000; Jimeno et al. 2006; Lo et al. 2010; Loehrer et al. 2011; Pavese et al.2010; Wang et al. 2012).

Masato Hada

Ergin
Member

Dear Dr Masato Hada,

Thank you for your great advices.It is not a normal thing in this world that a doctor helps people in public place.
I am very happy and excited when i see your thoughts here.They give us hope.
I wonder your thoughts on iv curcumin,DCA and salinomycin also.If you can find time could you please write us about them.
Your experiences maybe.
Kind Regards
Ergin

Masato Hada
Guest

Dear Ergin,
After graduating Pharmaceutical School, I entered Medical school, so I’m qualified pharmacist and doctor. I had the surgical training under the US surgical specialist. After the cancer operation, recurrence was inevitable. I selected the most effective drugs which we can get according to the authoritative references (thalidomide, celecoxib, valproic acid).
I read the reference below,
Eur J Med Chem. 2016 Dec 23;127:100-114. doi: 10.1016/j.ejmech.2016.12.043. [Epub ahead of print]
Synthesis and biological evaluation of curcumin inspired indole analogues as tubulin polymerization inhibitors.
Sri Ramya PV1, Angapelly S1, Guntuku L2, Singh Digwal C1, Nagendra Babu B1, Naidu VG2, Kamal A3.
https://www.ncbi.nlm.nih.gov/pubmed/28038323
At present, I think curcumin is at the stage of research and development. I cannot answer more because I’ve never used curcumin and never learned curcumin at pharmaceutical school.
Masato Hada from Japan

anna
Member

Dear dr Masato Hada,

Would you consider to help me how to overcome or not to let to develop resistance to erbitux in colorectal cancer? Which treatment, substances would be synergistic?

I do not how to move to another topic here as this topic belongs to ergin.

Thank you in advance for your help.

Pouya
Member

Hi sorry Ergin to make your thread a bit off topic,
but I need some serious and fast advices for my mom who is currently at a very late stage and getting worse day by day. she has stage 4 CRC with mets to liver and possibly other organs since we don’t have a recent scan. she hardly walks anymore and is dealing with cachexia and ascites/edema. I know our chance is next to zero but still..I’m getting DCA in the next few days and wanted to know if anyone has any advice regarding starting it for a very weak patient.
I gave her Thalidomide for a week a few weeks a go and I noticed some improvements but I was scared to self administrate as I don’t have a recent blood work to know what exactly were the risks.
I do have ECCT too and I believe it was helping to an extent but my mom rarely uses it anymore as she expected a fast improvement which was not happening, same thing happened when we were using MG too.
I’d be very thankful if you guys shared any thoughts/advices.
Pouya.

anna
Member

Pouya, why wont you try maraviroc. Looks really promising. We started to use it recently, but we use it together with erbitux. We had good scans, we do not know if it is erbitux or maraviroc or both.

Ergin
Member

Hi Ann,
Very happy to hear good news from you.We all need this.
Could you please expand how did you used them.What is your protocol?
Really excited now.
Have you experienced any side effects from maraviroc?

anna
Member

Ergin , I do not really know if I should write here (it is your topic)or in maraviroc thema.
We used erbitux for 2 months (still using). Cea decreased from 550 to 125 just in one month. Two weeks ago we added maraviroc, low dose 150 mg twice daily, not like in clinical trial 300mg. The big issue is the liver, which after very unsuccesful sirt is cirrhotic. The issue is very severe diarhea and little by little climbing bilirubine. I made some research and I am not sure if Maraviroc and Erbitux are synergistic. I found contradictory literature and I am confused. I will put zll these literature maybe tomorrow, I write now from my phone, and it is not easy.

I find Maraviroc really synergistic with any other chemo or as monotherapy but Erbitux. … makes me hesitating. Usually erbitux just stops tumors from growing. We had tumor regression, what can be only due to immune reaction started with CD8+ and then cross talk with DC and NK. But ccr5 antagonist stops CD8+ infiltrating according to what I read. On the other hand it stops CD8+ killing by Tregs. .. I am really confused.

But for Pouya mum I would really try it. There were people in clinical trial whose tumors dissapeared after Maraviroc and the other for whom chemo worked again after failure.

Ergin
Member

Dear Pouya,
Very very sorry to hear about that.I really understand how you feel.
Please dont panic .

I saw good results on curcumin iv which is safe to use for late stage patients.Our CRP declined from 50 to nearly 0 in the first week.And wbc also improved in first week.(our dr gives iv mannose: an antibiotic,for high CRP and saw good results)
And after improvement of blood counts i think she can take chemo+salinomycin etc..
You have to control blood counts.It is MUST.

I cannot compare curcumin iv and salinomycin because we only try curcumin iv.
She take 9 ipt chemos AND nothing was happened.Stable disiease only.But after using iv curcumin 4 hours before chemo,
we saw the good results.Second week after iv curcumin +chemo+iv vitc tumor markers began to decline and hair loss begin at week 3 interestingly.

For DCA:Emad saw good results while using it with chemo.
How you can begin?I think with very low dose…Because for my mother (who takes 600mg x1) fatique began in the very beginings.

This is my experience with iv curcumin +iv vit C.She began DCA only 5 days ago so we have no outcomes yet.

Pouya,it is very hard for people to give advices at this position,you have to decide it at your own risk.Here we can only write you our experiences.Please search for collodial silver.I really wonder it,but never see a patient before who used it.And dont take it as an advice please.Just search.May be we can find someone who uses it after my message.

Kind Regards
Ergin

Pouya
Member

Thanks Ergin and Ann,
It’s too late now. My mom’s condition suddenly became even worse. She passed away today. I just hope she forgives me that I was not brave, knowledgeable and smart enough to make better decisions for her. After all I was just an artist with zero scientific background. Wish you friends all the best in your fights.

anna
Member

I am so sorry Pouya. I am sure you did your best. The truth is we do not know yet the best way and sometimes too much is worse than not enough.
My heart is with you.

Emad
Member

I’m very sorry to hear that tonight 🙁

please stay strong , my heart is with you man

Ergin
Member

Dear Brother Pouya,

I deeply sad for your loss.You are kind and good person enough to say thanks to us in this day.

Ergin

Meech
Member

My condolences Pouya. Very sorry to hear that.

At the end of the day, you shouldn’t be asked to make these choices. You are not a medical professional, nor are any of us. You gave it your best shot, trusted your gut and did your diligence to make sure you didn’t speed up your mother’s demise and you can’t be faulted for that. It’s a lot to ask of someone to cure cancer. You should be proud of your effort.

Pouya
Member

Thanks dear Daniel, of course I’ll be staying in touch with you both here and in private as you are the best person that I’ve ever known in my life.

Dear Ergin,Emad and Ann thanks or your kind words. never let your loved ones go. I hope none of you will feel what I felt today.

Dear Meech,
Of course I’m partly to blame.I consciouly took the responsibility to take care of my mom knowing that such love can not be replaced and I failed at it. I should have tried harder, be braver.
I know that this is inappropriate to share here but you guys are the only ones that could possibly understand the pain that is killing me inside. When my mom’s condition was deteriorating and she couldn’t make her own meals, I was trying to manage her diet in a way that we don’t feed the cancer and buy some time to get new meds. My dad however kept feeding her all the things that should’ve been avoided because her oncologist had already given up on her and he kept telling me that I was torturing my mom with things I’m doing. he was convinced that neither diet nor anything else helps my mom and chemo was her only chance. keeps telling everyone that my efforts were desperate tries of someone who couldn’t accept the reality.
That made me feel terrible and become indecisive regarding all the things I was doing and all the risks I should’ve taken in the most critical time. still I should’ve been brave and did the right thing.
Add that to the complications this god damn cursed country had enforced upon us. Keeping ECCT at the customs for 2 months was the least, we do not get to have a credit card so in order to buy a simple supplement I had to find someone who had one and another person to carry it here so that it wouldn’t be held in the Iranian customs forever. That approach would still take at least a month for me to get what I needed. sometimes more because the second person had their plans changed,etc.
Point being; There are many other pieces needed aside from proper treatment, to complete the puzzle of cancer especially in a 3rd world country. If people were more aware and knowledgeable I probably had the most important piece lacking which was the support of my family. believing in what you do as mentioned by Ergin is truly a key element indeed. when my mom was giving up on MG and other treatments no one besides me asked her not to. I did a terrible mistake of telling my mom that MG is usually followed by symptomatic improvements soon after starting the treatment. we started MG right when Ascites was forming so she couldn’t see such improvements that soon. it was only after stopping MG that and sudden worsening of her condition that I realized it was indeed working at least to an extent. this was the time that a family support was needed to convince her to resume MG or at least other treatments especially when I didn’t have anything to replace it. every little thing matters. people dealing with cancer are very emotionally fragile and every single word or gesture may affect them in way we don’t expect.
so I’m now left with a mixed feeling of sadness, remorse, hatred and pity towards everything and everyone around me and I know that I have to deal with unbearable regret due to the mistakes I made. Feeling like a total stranger in a place where everything seems to be deliberately designed to be against you.
sorry for a very long and irrelevant post but I had to share it with someone who could understand.
I understand if Daniel decides to delete or remove this post as it has nothing to do with the topic.
thanks everyone who ever tried to help me.
Pouya

Pouya
Member

Dear Daniel,
I am looking forward to a skype call as I’m not done with this fight yet. I have a plan that I need to discuss with you. I’m also staying here with you guys and keep learning and spreading the word and help everyone that I can especially in my own country where no one knows anything about any of this. I have seen famous Iranian Oncologists writing articles on their websites on diet in which they have adviced patients to take icecream and cake in order to get enough energy to go through their treatments and also that “patients should take everything that is halal” meaning it is not forbidden by god!
I know that I shouldn’t blame my father but I can not help it no matter how hard I try. The image of my mom’s helpless struggle in the last day keeps haunting me. The way she asked me not to leave the room and leave her alone. My question from every one who ever claimed to love my mom is simple; why didn’t you have the curiosity to know more? Why didn’t you bother?
you are right though, the damage is done and none of these will bring back my dear mother so I’ll try to focus on the fight and educating myself and also the plan that I will tell you about through our pivate communication.
Pouya.

Ergin
Member

Dear Pouya,

I always write and erase here to you.I cannot not find the right words to write.Believe me after your loss,
we all are thinking of you.Everyday i am thinking of you.But It is life man,sure very hard but please think like this:
Your experiences are going to save lifes in the future,i am sure of it.You can help people there and here with your experiences,life is going and give yourself some time without thinking cancer.We began 4 people to treatments and lost 3 unfortunately in my country.They spent lots and lots of money,expensive doctors,treatments and time.It is not so easy to switch treatments and begin new medicines at terminal case and may be more dangerous ,so never feel guilty please.
I dont know you have children or not but they are changing our lifes positive.
Think future,never look past.

Ergin

anna
Member

For you Daniel and for you all my Friends here, I wish you all the best in New Year.
I wish you on first place health, that is what we and our closest need the most. I am dreaming that this year maybe we have solution against this horrible disease.
I wish you also a lot of love and joy, how hard it can be to reach, just to try and treasure every day !

Ergin
Member

Dear Ann,

Your experiences about Maraviroc and Erbitux is very valuable.
And it really needs more attention.When people begin to use some medicine they totally forget us.
If the result is good or bad,we cannot find them anymore.You are not from those people,please keep with us.
We need your experiences Ann.

Happy healthy new year to you and to all friends.

Kind Regards

Ergin

anna
Member

Ergin,

As soon as we have experience we will share it.
I believe in this medication.
For the moment Freddy stopped Maraviroc, because diarhea which it causes and travelling is too difficult.
I would like also to find out if Maraviroc do not work against erbitux.

Tanya
Guest

Pouya, my condolences. I am very sorry for your loss.

I truly hope 2017 brings happiness, less pain, and much health to all of us.

Tanya

Ergin
Member

Dear Friends,

Could you please help me on Tetrathiomolybdate(TM),copper chelator.Does anybody has tried or now using TM?
I read the link that Daniel has created about TM but couldnt find someone who is using it.
How can we control blood counts,at how many days to check?Does it really takes for 1-2 month to show its efficacy.
IF IT WORKS,you have to use it without stopping.Can we live with low copper?
Than if we have to stop it because of side effects,tumors grow faster than before.
What does IF IT WORKS mean?,i am always thinking about this question these days?
Does it mean that copper is not depleted by the help of TM or copper is depleted but not working ?
I think i cannot find an oncologist who is expert on TM in my country.
May be Wilson’s disease is the key.

Could you please share your experiences about TM,if you have?
Or Daniel may want us to talk this situation on the link about TM.
Kind Regards
Ergin

Ergin
Member
Ergin
Member

Hi Daniel,
I am working on it.
I am seriously thinking to add TM to our protocol.But after the latest DCA results on saturday.

Ergin
Member

Interestingly collodial silver also deplets copper,maybe more than TM.
I am sorry to write here about this copper depletion,but i am confused where to write DCA and TM or collodial silver.

Ergin
Member

Thanks DANIEL,

You gave me a great hand and that helped me too much.Thanks for everybody that helped me in this post.
I am going to write to the related posts from now on.That is better ,i also think like you.
We are going to become a good team here with our friends .

Kind Regards and Many Thanks
Ergin

Helga
Member

Dear Daniel & Ergin & All,

I have been reading your blog in the last few days with tremendous interest (as I suspect I may have ovarian cancer). I was taken with the power of your writing especially about your beautiful angel, your wife and my sincere condolences upon losing her, which must have been a heart-wrenching experience. I am writing about Coley’s toxins, a very interesting early “immune” therapy in the 1st half of the 20th century. Here is a good article to start (though a bit wishy-washy, in my opinion) http://www.cancerresearch.org/news-publications/our-blog/april-2015/whatever-happened-to-coleys-toxins and a patient still alive after his sarcoma treated by Coley himself more than 60 years ago: http://www.theanswertocancer.org/online-community-for-cancer-immunotherapy/stories-from-patients-and-caregivers/donald-foley-patient-story Unfortunately Coley’s toxins are not available for now and regulations have become so extensive that it would make it prohibitively expensive to restart it. Still, it was an amazing therapy and folks should know about it and demand its revival. Cannot fathom why it would be so pricey to make sure that the bacterial strain remains the same. Do they do that every time they produce a protein using E.coli? My apologies if you consider this topic redundant. As you can see from the 1st article (I linked here) there has a clinical trial been started in Germany but Phase 2 would be way too expensive. Maybe, Ergin, you could check if this is an option in Turkey? I am rooting wholeheartedly for your success regarding your mom’s cancer and am amazed by all the information and logical conclusions you all draw by analysing the available information.

Alex
Member

Just here to wish you and your mother but the other readers a great new week ahead.

Warm huggs to you ergin, your mother and everyone else.
I can not express the deep gratitude and all the other emotions me and my mother feel when we read here and of course when we see how much help we are getting.
THANK YOU!

Alex

Ergin
Member

Dear Friends,
I wish i ll give you good news today but unfortunately markers are still rising.
These days i cant think healthy as you see from my extraordinary questions and maybe i mixed some of your minds because of it.
I am really sorry for that but something is going wrong.And i can not find the solution.So i have to ask everything in mind.
30 minutes past here and i dont know what to write.Only the good thing is albumin 38 if it shows stg.
Her bowel movements is not good,painful for 1 week,tumor markers are rising,very low PLT.very high LDH and blood glucose is high 120?
Things are not going good these days.But it will be good,never give up.As Emad says we didnt use the powerful treatments yet.
When i find my mind,i will wirite the probable causes of rising markers.

Daniel,i am very happy that you are in my life.You give hope,knowledge and power to all of us.I feel your help always near me.
But sometimes we dont know how to use your knowledge.It is not your fault.You wrote there lots of valuable things but i used only few honestly.
Phlorizin is always in my mind,and as soon as possible i ll try it.

Emad
Member

sorry to hear this Ergin

but is there any chance that there is a rising in tumor markers while cancer is shrinking ?

how about using Sal, 3BP or MG ?

are you having trouble using IVs ? is there a medical port placed on your mother ?

stay strong man , we both have a big challenges facing us , but I believe that every cancer have a weak spot , and that weak spot could be found when we try hard many times

wish you the best my brother

Alex
Member

Dear Ergin,
Reading about your mother got me thinking.
IF nothing seems to be working for your mother and things are getting worse than they were, than maybe a more basic approach should be considered.
What about her weight, age, height? We want to consider body mass, mentain or obtain optimum nutrition while inhibiting cancer growth as much as possible.
Assimilation of treatment elements in the body may not be good due to possible problems on liver, pancreas, intestines, lack of enzimes, nutrients, vitamins, minerals, beneficial bacteria, kidney problems or other glands or reasons. I hear hormones also play a role……
If pain is existent, it normally goes away with good treatment within a few hours for the most part, some pain may still be there due to tissue damage that is still there and that takes time to heal once the tumour starts to retreat.
The thing that helped my mother the most was aspirin, but that’s just my opinion and it is indeed dangerous, would still love someone with better education to show up with a solution to the aspirin side effects.
This you may find interesting https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4673260/
I can say it helps based on our experience with pain, but that’s where it stops.
I am just as confused as you are.
I don’t have answers, just some stuff i read……

Good luck, Let me know.
Alex

Pouya
Member

Dear Ergin,
I’m going to quote Daniel here, this something he once told Mar(r.i.p) if I remember correctly and I always thought it was a very valuable piece of advice;
it is not about pushing a few chemicals into the body, it’s about when and how.
So what I’m saying is that the problem may not be rooted in your choice of treatments, it may be how you are using them.

Ergin
Member

Thank you Pouya still you are here for helping.
You always wrote about MG.I wonder your kind oppinions about it.
And citric acid?

Pouya
Member

I personally like MG a lot. probably more than many other treatments because my mom tolerated it very well and I also noticed my dear mom deteriorated very quickly after we stopped it so my impression was that It was working, we made the mistake of mixing it with many things including Metformin which I recently found out might have rendered it useless for sometime. I stopped Metformin at my own risk at the time but it was late. but as Daniel mentioned to you, this is betting on MG alone which may be risky in your case. one thing about MG in the oral form that you need to bear in mind is that it needs 3 months to show if it is working. this is something that both Prof. Ray and an integrative doctor who was working with MG told me when I met them which I wasn’t aware of. so if you decided to go with it don’t expect a fast response on markers before that. in the clinical trial there was indeed someone who went into complete remission after that 3 months (lung patient) but from what I remember he had not been treated with chemo before and probably was a lucky case of early diagnosis.
so, during those 3 months what you should expect is symptomatic improvements; better sleep, less pain, more energy, etc. aside from that, Daniel and some of other posters here have always been concerned about the potential heart toxicity of MG. because when on MG you will notice some LDL risings and also in the clinical trial there are 3 patients who have had heart attacks after the treatment. however when I asked Prof. Ray about such risk she denied it and told me that it’s proven to be safe for heart. so keep both of these in mind.
I have not been able to form an opinion on CA because we didn’t use it.
hope it helps.

Ergin
Member

Dear Pouya,
While i was looking past treatments of my mother,i catch your message.
It is a very late thank you but THANK YOU.
At least now we know the working mechanism of MG,or i think i know.
MG works on inhibiting both glycolisis and mitochondrial respiration which damages hearth cells also.
Creatine is must.I wonder are you still in communication with Prof Ray?
Is there any update from MG patients?
Kind Regards
Ergin

Pouya
Member

Hi, dear Ergin, I’m always here lurking and learning as you probably have noticed. I’m not in contact with Prof. Ray at this point. however my best friend’s uncle has recently been diagnosed with stage 3 lung cancer, so I might have to contact her again if things go out of hand. I can contact her on your behalf too if you are busy with other challenges. let me know if you have an specific question(s) or that I can be of any other help.

Ergin
Member

Thanks Pouya i will write you my questions by mail.
If you can help ,this will be perfect.

Alex
Member

So i was reading about anti-conceptional pills for women and risk for ovarian cancer.
Makes me wonder if there may be a hormone problem of sorts…. if so would there be any test for it? If that’s the case then maybe there is some treatment to regulate hormones to normal levels to stop cancer growth.
I have a “feeling” this may be another side of the story for many cancer types.

Thank you.
Alex

Alex
Member

Dear Ergin,
You do a lot of blood tests for your mother.
I have found this table on the internet, i won’t say the information is to be trusted or not.
But if the information is to be found relevant than maybe it will help you and others
http://www.drjnaturalcancersupport.com/functional-bloodwork-values/

Still looking forward for us to get together on skype if possible.

Best wishes,
Alex

Ergin
Member

Hi Alex thank you for the link.Did you take my mail?

Ergin
Member

Please Daniel.

Ergin
Member

Thanks Daniel,
While waiting for your valuable searching,
There is a correlation between citric acid,testosterone and ovarian cancer.
Again i will mix peoples minds but we have to search.

Ergin
Member

Hi Daniel Thanks,
Her cholesterol is also high.You are right.

Alex
Member

from what i remember we need colesterol when we have internal damage to fix blood veins, it is my understanding chemo tends to do such damage, thus colesterol would be needed to prevent internal bleeding.
Forgive me if i am wrong but that’s what i know and perhaps high colesterol may not be that bad.
Then again i have no medical qualification, just something i remembered about the need of colesterol in the body an have made a connection with the damage caused by chemo.
This brings me to another thing i’ve heard and that is, salt… “we are using the wrong salt, we should be using pink salt” something in raw form i guess, out from the mine and into the bag.

Someone please say otherwise if the connection i made is not plausible.

Good luck,
Alex

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