Your Contribution Needed on Non Small Cell Lung Cancer Story from PaulF

Dear Friends,

I was recently contacted by PaulF, who kindly asked our help on generating ideas on options that he may consider for his dear sister who was just diagnosed with stage 4 non small cell lung cancer two weeks ago.

On the same line as the post from Ergin, https://www.cancertreatmentsresearch.com/your-contribution-needed-on-ovarian-cancer-story-from-ergin/ I would like to invite you if you could please share here ideas and experience that may be relevant for PaulF and his dear sister.

Off course, as the disclaimer is also stating, this website is not intended to offer medical advice but to try and get together as much collective knowledge as possible, so that finally, together with our medical doctor we make informed and successful decisions regarding our treatment strategies.

Here is the message from PaulF:

My sister was just diagnosed with stage 4 non small cell lung cancer two weeks ago.   She had been having trouble breathing for about 6 months and then suddenly two weeks ago could not breathe at all.   She went to ER locally and they did a chest x-ray and CT scan showing to Right lung almost collapsed due to the fluid in the chest cavity.  They took off 1650ml of fluid and sent this to lab showing the entire R lung to be involved but no extension outside of the chest wall.   She will have a PET scan tomorrow and then an oncology visit on Friday with a medical oncologist.   I am hoping she can possibly use Keytruda or one of the other check point inhibitors.   She prefers not to do chemo or radiation if possible.   I have start her on multiple supplements at this time, which I will list below.

Curcumin 3g daily

Selenium 400mcg

Black Cumin seed oil

CBD oil

Quercetin 3g daily

ALA 600mg daily

Vit C lipsomal 2g daily

Vit D 8000iu daily

Green Tea Extract

Do Terra essential oils DDR Prime and Frankincense

Magnesium 300mg

Iodine 12.5 mg daily

Protelytic enzymes

Proton Pump Inhibitor Omerperazole

She is also doing baking soda and hydrogen peroxide food grade with a nebulizer.

These are more support supplements at this time and I am really wanting something to actually fight the cancer.  Any suggestions directly for lung cancer would be most helpful  I see a lot of re-purposed prescription meds, but not sure which would be most helpful at this time.   Due to just Medicare she doesn’t have the ability to travel. 

Paul

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151 Comments on "Your Contribution Needed on Non Small Cell Lung Cancer Story from PaulF"

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Ria
Member

I think the care oncology clinic in london could be the option

PaulF
Member
Daniel and others. Thanks so much for your compassion and comments. This is a very stressful time for our family. Pet Scan was completed this afternoon with results tomorrow. We see a medical oncologist tomorrow as well for chemo or radiation options. She really does not want to do chemo or radiation. I am particularly interested in Immunotherapy as Keytruda has now been approved for Lung cancer. We are really wanting to target alternative treatments that will have some killing affect on this cancer. Lipid strategy is a possiblity. She is already on Green Tea Extract and Curcumin, which should… Read more »
Alex
Member
Dear Paul. My mother is suffering from almost the same thing. Adenocarcinoma of the lung with spine bone invasion, post operative, poor diferentiation. Surgery was a big mistake in our case so we stopped there, then started research after being struck by the idea, something may not be right here…. looking left and right, seeing all the suffering and pain for those coming out from “treatment” was not a nice view. They took out part of the lung in a massive surgery, leaving tumor tissue where they couldn’t cut into. Giving the procedure a time buying solution rank at best.… Read more »
Andreas
Guest

Hello Alex
I just wonder what CA is ?

Alex
Member

Hi Andreas
We use CA for Citric Acid, takes a while to get used to.
ALA – Alfa Lipoic Acid
DCA – Sodium Dichloroacetate
HCA – hydroxycitric acid – Garcinia Cambogia
Others i am not aware of.

Best wishes,
Alex

Andreas
Guest

Seems to be a good combination , I usually also see people using low dose naltrexone using ala and Hca.

Helga
Member

Dear Paul,

you might be surprised to find out that several patients here (myself included) use citric acid and in line with Daniel’s ph article it seems that acidification of the body and the tumor (in combo with proton pump inhibitors) may be a better strategy than alkalinization. I take about 15-18g citric acid but Dr. Halabe started this kind of treatment in Mexico and he comments here once in a while.

Alex
Member

Dear Helga, you i understand are a doctor, would you have the basic equipment to do a baker’s yeast test with CA?
Thanks!
Alex

Helga
Member

Dear Alex,

No, I am not a medical doctor. But what is the test you are referring to? You mean, add CA to yeast and see what happens?
Cheers,
Helga

Alex
Member

Yes i was thinking about bakers yeast, favorable situation for it to ferment, adding some Citric acid in containers and see what goes on in various situations. Low dose, high dose, no dose etc.

Many thanks, I hope you are feeling well.
Alex

PaulF
Member

Alex and Helga

Thanks for your encouragement and concern. I am seriously considering the DCA but am not sure what else would be good to use synergistically with this treatment. Perhaps someone will have some ideas.
Helga I have read the post on Citric Acid and this seems to be a very good treatment. Thanks for this info.

Paul

Meech
Member

I’ve heard from Dr. Khan at Medicor that he’s seen some synergy with DCA and platinum based chemotherapies. I think it may be anecdotal though. Daniel has a post on DCA here with synergistic agents.

Metformin has shown synergy (as per a few papers, and Dr. Khan again suggests it).

ezjohnson
Member

I had almost the exact same thing happen to me about a year ago. Check to see if they can do genetic testing on the fluid drained from the lung or get a needle biopsy if possible; to see if you get a match for EGFR, ALK, ROS, etc targeted treatments. Also insist they send your samples in for Foundation One testing. If you are in a small town in the good ole usa and your oncologist is not familar with these get a 2nd opinion from a doc in your nearest city.

ovidiu
Member

I second this. Targeted therapies, with TKIs, while limited in results for many patients, are MUCH easier to bear than platinum doublets.
Also check if it is adenocarcinoma or squamous cell, the best treatments differ.

Alex
Member

Dear Ovidiu,
My mother has gone trough her first chemo cycle, carboplatin, bisphofonates, vitamins, omeprazole, etc.
After all your research, what would you say we could talk to the oncologist about?
Things to support the treatment……
At the moment we are a few days away/maybe a week from getting Erlotinib.
Looking forward for your best answers,
Thank you and good luck!

ovidiu
Member
I would add a moderate dose of diverse probiotics (large dose can damage the liver and pancreas), they can augment the efficacy of platinum treatment. Well-balanced commensal microbiota contributes to anti-cancer response in a lung cancer mouse model. https://www.ncbi.nlm.nih.gov/pubmed/26125762 Regarding Erlotinib, it is only useful if the patient has the EGFR mutation, and for stage III (cancer cells that have undergone EMT are resistant to Erlotinib). But it may be possible to reverse resistance to Erlotinib with Disulfiram (40 mg, 2 – 3 times a day), which is a potent PLK1 inhibitor (and it’s metabolites probably too). Cells that have… Read more »
as
Member

Don’t forget to support the body with proper nutrition, a vegan ketogenic diet is ideal. Admittedly I am not familiar with the lipid issues mentioned in earlier replies – not sure that affects this general approach. Some of these substances are harsh on the body and nutrition is key. Green juices, green smoothies, vegan keotgenic with moderated (not high) as per Dr Seyfrieds study which I believe applies to all cancers.

Andreas
Guest
I would like to make a point on the supplement , both curcumin in its original form and quercitin is poorly absorbed in the body. However there are new technologies improving the bioavailability of curcumin , some of them like nano curcumin, liposomal curcumin, bmc 95 and so own. However the best absorbed curcumin, that I have come in contact with , if one can believe the company, is Ultracür . This curcumin is bound to a whey complex ( protein ) which raises the amount of curcumin in the blood significantly. In the order of 180*ordinary curcumin. When we… Read more »
PaulF
Member
I wanted to give a update on my sister. We got the results of the PetScan yesterday and there is no metastasis outside of the lung. MRI will look at the brain next week. We met with the oncologist also and he did have several Immunotherapies that have shown good response in lung cancer (Keytruda). He stated no surgery or radiation would be of any help. Chemo would only at this time give her better quality of like, but as always with a price of some side affects. It looks like I am going to have to try many of… Read more »
Ergin
Member

Hi Paulf,
First we have to understand mechanism and which drug which target.This is must.
You must read this page carefully because i didnt read upto months and surprised.

https://www.cancertreatmentsresearch.com/cancer-treatments/
Kind Regards
Ergin

Alex
Member
Dear Paul, i asked the same question in the recent past and Daniel said that there’s sufficient data pointing to possible fatal results when combining DCA+Artemisinin. as treatment. The mixture would be potentially fatal due to liver toxicity. IF you have some $, i would get as many tests done prior to treatments. The goal of the tests would be to to show you defficiencies in blood, minerals, immune system, hormones, glands, tumor markers, etc (the more tests the better). This would probably save you money on the long run and you wouldn’t loose valuable time with treatments of all… Read more »
PaulF
Member

Alex

Thank you very much for this information. I agree it makes so much sense to know exactly what were dealing with rather than throwing the whole sink at the disease. We have started a lot of testing at this time and many scans. I see you have changed your protocol several times after reading many of the above posts. What do you feel right now has been the most successful for your mom?

Paul

Alex
Member
Dear Paul, Changes have been made due to many reasons, availability of treatment elements, financial problems, side effects, and very importantly, reading here about the synergism between the treatment elements. Aspirin and CBD oil helped the most in the past. Sadly aspirin can not be taken too long due to side effects, Daniel warned plenty of times and i respect his wisdom. Still some aspirin i believe is necesarry to reduce the high risk of blood clots as long as other benefits. I say sadly because in my ignorance i find that aspirin is highly potent anti-cancer agent. So mother… Read more »
Alex
Member

My suggestion in this order is:
1 do tests, the more the better. immune system, hormones, minerals, markers, proteines, lipids etc. etc. etc.
2 after blood collection for tests, begin transition to vegan diet
3 reduce inflamation of the body with supliments, food, drugs
4 check results of tests and find the best solutions based on tests
5 monitor with markers

I strongly believe in those 5 at this time.
Remember, i am fighting the “same” problem with my mother at this time so i may be wrong about all that.

Cheers
Alex

Helga
Member

Hi Paul,

I also link this article here: http://cms.herbalgram.org/heg/volume8/files/HerbalContraindications_E1_E2.pdf A list of bebeficial natural substances that can be combined with chemo. Good to hear that your sister has no metastasis. Alberto thinks that Pres. Carter possibly got citric acid with his Keytruda, based on the response, which as a standalone treatment was not quite as successful in others.

Kind regards,
Helga

PaulF
Member

Thanks Helga, this is the most complete list I have ever come across.

Paul

Alex
Member

Thank you very much dear Helga.
Very valuable info right there.

cracov02@yahoo.fr
Member
Hi, If your Daughter doesn’t take opiates you should try LDN (low dose Naltexone) which is really powerfull. See the woks of Dr Burt Berkson and Bihari. I have met a french doctor who used it in association with Artemisia annua and he has great result with some patients (But Dr Bihari did the same a few years ago). And artemisia seems to work well for cancer lungs. This is what he did : He gave Artemisia annua during 5 days, 4X6 = 24 pills per day. I dont remember the concentration of the pills, i f you are interrested… Read more »
cracov02@yahoo.fr
Member
Hello Daniel, I was interested in the alternative treatments on cancer because one discovered a pancreatic cancer to my mother in law. And I accidentally discovered the work of Dr. Laurent Schwartz, who gave me hope. Unfortunately, pancreatic cancer is one of the few that does not work with lipoic acid and hydroxycitrate. So I continued my research and discovered Dr. Burt Berkson’s work on LDN and lipoic acid, but unfortunately it was too late because my mother-in-law was already taking a lot of morphine. So I enrolled in a French association that brings together many patients around Dr Laurent… Read more »
Helga
Member

Hi Sylvain,

that is a very interesting info. could you tell why you think artemisia is banned in Europe? there seems to be a german product: https://www.amazon.com/Artemisia-Capsules-Wormwood-Artemisinin-Production/dp/B00SR8VQ82

but I have seen such bans myself. On cimetidine mainly. by cbd you mean cannabinoid oil? where can you get that?

thanks in advance,
Helga

cracov02@yahoo.fr
Member

Hi Helga,
My french doctor recommend me this website for high quality product of CBD. But i didn’t try, it is too expensive for me.
http://www.alpha-cat.org/potency-tested-cbd-products/

CBD is oil from hemp i believe, but there is no THC inside. But you can find all informations on the internet about this.

Lars
Guest

Hi Paul,

can you give some more information on your sister? What is her age? And is she a smoker, or former smoker? And where in the world are you (or she) based?

My wife, 32 years old, has EGFR positive NSCLC. We have been in this fight for a couple of years. If you answer the above questions, I will try to come back with some further comments.

Also: do you know if they are testing for PD-L1 expression? That may be useful in order to determine whether immunotherapy is a good option.

PaulF
Member

Lars

Thanks for being willing to help.

My sister is 70 years old. She was a smoker for 20 years, but did quit 29 years ago. We both live in Oregon.
We have just compelted the test for genetic mutations and are awaiting the results. They will test for PD-L1.

I would really appreciate knowing what you are using at this time as a treatment protocol

Paul

Ergin
Member

Hi Lars and PaulF,
May be you want to search for CimaVax-EGF Cuban cancer vaccine.
used for specifically non-small-cell lung carcinoma (NSCLC).
Kind Regards
Ergin

PaulF
Member

Ergin

Thanks for the help, I will look this up and report back.

Paul

PaulF
Member

I have been researching cannabis oil and it seems the best results have been with a oil with higher THC. A 4:1 ration of THC/CBD has been suggested.
A FECO (Fully Extracted Cannabis Oil) is the preferred one being used, which is the same at Rick Simpsion Oil other than Simpson uses a different extraction method.

Is anyone using such an oil as described above?

Paul

Alex
Member
Hi Paul, Canabis oil…. don’t go with the wave, get the best oil you can get and don’t think about it much. I bought it for my mother from a local manufacturer and it was good, it was advertised as a miracle cure, just like everything else in this business. It helped her but not something you would notice very easy. We did aspirin+cbd oil and oh boy that felt awesome. When i gave my mother aspirin and saw she felt alive again, i felt like i should be given a nobel prize for it. But it’s not that simple… Read more »
PaulF
Member

Alex

Thanks for putting this into perspective, it is easy to be swayed by just one treatment, but the overall picture is what we have to focus on. I really appreciate your comments.

Paul

Alex
Member
So my mother has a enlarged nodule on her arm, its been there since early January. Started small, and stabilized. Lately it’s been getting softer and then harder but mentaining size. (due to treatment) How does one interpret this? Is it a tumor or not? If it is a tumor i feel it may be used as an indicator of successful treatment or failure…. and it’s hard today. (Strangely mother is feeling great) Oncologist today told her that remission should be painful. That if you feel good it’s all bad, but if you feel bad then it’s good. Oncologist gave… Read more »
Alex
Member
SO i’ve told my mother to take 2 capsules of HCA because of the amount stated on the container, it says 1500mg / serving of 3 capsules but only now i realize the amount of extract in 3 capsules would be 1050mg I understand Dr Laurent used a dose of 1.8g/day of Alfa Lipoic Acid and 3g/day of HCA as maximum values. In the case of Alpha Lipoic Acid i can’t find more information on the container, simply states 600mg, so that would mean 3 capsules/day. I am wondering if HCA should be 9 capsules/day instead of 6 as mother… Read more »
PaulF
Member
I had emailed Dr. Hada in regards to my sisters Stage 4 NSCLC and asked his opinion on a treatment protocol. He was very generous to get right back to me with some good info that may help others as well. I will quote the following paragraph from the email he just sent. To Mr. Paul Fieber I estimate that your sisters accumulation of pleural fluid is caused by VEGF. Thalidomide and celecoxib is strong anti-VEGF drugs. In addition to the drugs low dose metronomic gemcitabine are very effective. The direct infusion of cisplatin into the pleural cavity is also… Read more »
PaulF
Member

Hi

I have been looking at using 3BP for my sisters stage 4 lung cancer but read that it does not work as well with large tumors. I emailed Dr. Jason Williams and he verified my thoughts. He states not enough of the 3BP will get to large tumors and this in turn can cause the cancer to become more agressive. Has anyone else had this experience. My sister has a very large mass to her entire R lung.

Paul

PaulF
Member

I am considering using 3BP as a core treatment for my sisters stage 4 lung cancer. What other supplements and therapies would work along with and enhance the use of 3BP?

Paul

Helga
Member

Regarding heat treatment (sorry Paul F for hijacking your topic) I just remember that in school kids ate chalk if they didn’t want to go to school as this caused them a fever. While not suggesting we should try eat chalk, I wonder if it is known why it causes it? And how damaging is it for the body?

Alex
Member
lol, why eat it when you can fake it? LOL Anyway… as for resistance to hyperthermia, it occurs because of plastic changes, chemical bonds that stay the same, new tissue will be vulnerable, says my reasoning from philosophy and some science. To kill those who were changed you need more heat than before. Our only true chance seems to be helping and reinforcing the immune system… anything that would work against that, should be discarded i think. While the immune system is not fast acting, it is quite obvious to me that it is the one to blame for having… Read more »
Wondering
Guest
hi Alex, re immune system: i dont think its about the size of the tumor. many actions of cancer are supported by our immune system. So sometimes if you make the immune system stronger it can enhance cancer too, on top of the risk of getting an autoimmune disorder that can be equally devastating. Sometimes lymphocites are helping cancer cells. The issue is they dont recognise cancer as such because cancer cells pretend (with chemicals and enzymes) that they are normal even when they get bigger and bigger. So if we could somehow make sure that they do recognise cancer… Read more »
Alex
Member

Thank you Wondering for your reply,
Indeed if we got a hold of these masks that the cancer is using to identify as self, maybe we would have a better chance at this.
Perhaps Daniel knows more about this or could ask about it. I also feel it would be of great value.

Many thanks, Take care.
Alex

Alex
Member

Looking forward for your findings “some chemoterapics (and some natural compounds) work by revealing the nature of cancer cells and re-enabling our immune system. I need to check which are these.”
Thank you,
Alex

Wondering
Guest

i have found the old article claiming this. basically they wrote that during many conventional chemo treatments (like cisplatin) researchers noticed that apoptosis is not independent from the immune system- the treatment marked the cancer cells, made those visible as cancer cells to the white blood cells and the latter ones stopped supporting cells that were not recognised anymore. i am sorry i can’t name any feasible option for you.

Helga
Member
Hi Alex, What makes you think computer simulation and modeling are not used to try to fight cancer? They are but you would not be able to locate them among computer game-writing programmers like the one you linked in your post. Like yourself said human biology is far too complex and these kinds of computer programmers are usually far too ignorant to be up to the job. But there ARE such people. I just had an Indian student, a girl visiting me who showed me her presentation about modeling a protein when it had a point mutation and showing that… Read more »
Alex
Member

Something we could all learn from this?
https://www.youtube.com/watch?v=-hUoyXKf81c
It’s a question.

Thank you so much,
Have a great weekend all.
Alex

PaulF
Member
Alex Thanks for the Utube video. I feel cannabis has very favorable affects if administered correctly. Most people still look at what Rick Simpson has been doing for 15 years. His treatment schedule is now outdated. It is important to get a higher THC to CBD ratio and the correct plant strain must be used. The Indica seems to be better for advanced caner’s. Also when making up the oil, the whole plant must be used as there are over 400 different compounds in a plant. This is not counting the terpene’s which can even be more important. The oil… Read more »
Alex
Member

yet another utube

https://youtu.be/1PNgTgxeUM0

nope no, text to read

Take care.
Alex

Alex
Member

LOL

looking for the one that’s right for NSLC and got this.

“Why is this medication so expensive?
Cyramza
$3,392.44

This medication is patent-protected. We are working to get you a better price. We encourage you to use your insurance if it’s cheaper, and browse our thousands of medications under $10.”

Ramucirumab (Cyramza®)

More proof of our species being pathetic, valuing $ more than life….. pathetic.

Alex
Member

What is cancer?
Proof of inteligent design? Lack of it?

I’m curious what would the scientists and thinkers of the past have to say about what is going on with this problem now.
I have a feeling that given all the resources available, past+present, that they would crack. History seems to me was more full of innovative thiking. Nowadays we only get better smartphone cameras, more data storage, etc….

http://leavesoflife.com/blog/wp-content/uploads/2015/02/hipocrates.jpg

Hipocrates, a man ahead of it’s times?!

Cheers
Alex

Wondering
Guest
hi Alex, I believe in Richard Dawkins view on the “selfish gene”. Basically it says that genes (just like memes) dont always “care” much about the body as a whole entity – of course they “want” to keep the human owner alive but they are not intelligent and they dont see the future. They dont plan. they reproduce. They activate themselves. They are selfish. They fight for becoming active. They counteract other genes or cooperate. I think cancer happens when there is an unlucky combination of activated and / or mutated genes that are harmful _together_ for the body. Note… Read more »
PaulF
Member

Daniel

Are you at all familiar with a product call Phophoethanolamine? It was originally produced in brazil and used there with many ancedotal cases of success. It was also noted to inhibit metastisis in Lung cancer.

Paul

Alex
Member

Dear Paul,
How are you and your sister?
Protocol update and status?
I hope you have good news.
Best wishes,
Alex

Carolina
Guest
Dear friends, paulF, did your sister try immunotherapy? My mom has non small cell and she was not a smoker so apparently immunotherapy works better for smokers. I thank all of you for this high level discussion. I seek advice. My mom was diagnosed with non small cell adeno stage 3b 2 yrs ago after left upper lung removal. Unfortunately there was lymphatic contamination already. She did 4 rounds chemo (carbon and permetrxed) plus 5 weeks of radiation which 3 months later had her in heart surgery for hypertrophic cardiomyopathy. Then 6 months later confirmation of metastasis tô lymphatic system.… Read more »
Alex
Member

Dear Carolina and friends.
Let us not forget the huge importance of Metformin, Simvastatin, Aspirin, Lansoprazole, Diclofenac, Cimetidine, HCA,
After all this time, these to me, stand at the foundation of treatment right next to diet.
Please add your own opinion, element.
Many Thanks,
Alex

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