Your Contribution Needed on Breast Cancer Story from Emad

Dear Friends,

On the same line as the post from Ergin, https://www.cancertreatmentsresearch.com/your-contribution-needed-on-ovarian-cancer-story-from-ergin/ I would like to invite you if you could please share here ideas and experience that may be relevant to Emad and his dear mom.

Off course, as the disclaimer is also stating, this website is not intended to offer medical advice but to try and get together as much collective knowledge as possible, so that finally, together with our medical doctor we make informed and successful decisions regarding our treatment strategies.

Here is the message from Emad:

 

Dear all , my name is Emad Abushofa , from Libya

In 2012 my mother diagnosed with metastatic breast cancer , Estrogen positive , Her2 negative

Tumor marker was about 500, she was walking hard because of mets in her legs

After 9 cycles of chemo then radiotherapy , the tumor marker declined to 30 , and she became able to walk normally again

Then she started on hormonal therapy , but the markers were raising slowly

Until August  2015 , the tumor marker became 2000 , so decided to return to chemo

She took  6 cycles of taxotere ( also I added DCA + Natural protocols like Budwig , MSM LIPH , Juicing , Liposomal Vit C)

The tumor marker declined from 2000 to 353

After another 3 cycles , but this time only chemo , the marker rised to 712

Then the oncologist changed the chemo to 5FU and venorelbine , 2 cycles with DCA , the tumor marker declined to 450

Then I stopped DCA few days and didn’t give it before chemo , the marker rised to 558

Then again DCA with chemo + artimisnin + baicaline , decline to 450

Then I run out of everything , marker rised to 714

Changed the chemo to Gemzar + Carboplatin , 3 weeks per cycle

Cycle 1 : chemo alone , decline from 714 to 685

Cycle 2 : chemo then DCA IV added lately (not before chemo) , raise to 699

Cycle 3 : chemo + DCA IV , decline to 517

Cycle 4 : chemo + DCA IV + one shot half dose Salinomycin base version , decline to 408

Cycle 5 : chemo + DCA IV + one shot full dose Salinomycin base version , decline to 317

Then we stopped 2 weeks because of blood transfusion , also runout of Sal

Cycle 6 : 2 weeks DCA IV only, then half dose chemo with DCA IV , raise to 380

Cycle 7 : chemo + DCA IV , decline to 350

Cycle 8 : chemo + DCA IV + 3 shots Salinomycin sodium salt version , decline to 330

Cycle 9 : chemo + DCA IV + 4 shots Salinomycin sodium salt , decline to 320

Then another stop for 2 weeks because of blood transfusion (DCA IV  + one shot Sal)

Cycle 10 : 75% chemo , DCA IV + procaine IV + high dose lansoprazol + 1 shot Salinomycin sodium salt in the same day of chemo

Tumor marker raised from 322 to 607

 

Few notes :-

1-     I started to give procaine IV just 2 weeks ago , 2ml of 2% solution , half an our before DCA IV

2-     My mother always had a marked tremor when using Sal , sometimes strong

3-     First 3 days of chemo I give my mother 180mg lansoprazole per day , then 80mg for other 4 days

4-     The mets on my mothers bones are small and stable for along time , but the mets in her liver are trying to grow fast , 5 spots less than 1cm , 3 spots between 1cm to 2cm

5-     Im not sure about the last chemo cycle, we felt like they didn’t give my mother the proper dose

Now I only have DCA + procaine, I have 100ml MethylGlyoxal , no more Sal

 

I will be happy to listen from you , your opinions will always help us

Thank you so much

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403 Comments on "Your Contribution Needed on Breast Cancer Story from Emad"

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Alex
Member

Dear Emad,
With all respect, i know you’ve been here much longer than me.
Where is Metformin? If you didn’t use it…….. it’s good stuff.
Any special reason for not including it or is it something you forgot to mention?

Best wishes,
Alex

Emad
Member

I used it for a while , maybe for 2 months

I didn’t notice any change with it

quote :
——————————
Then the oncologist changed the chemo to 5FU and venorelbine , 2 cycles with DCA , the tumor marker declined to 450
Then I stopped DCA few days and didn’t give it before chemo , the marker rised to 558
———————————

the 2 results above I was using metformin with it , also some others like chloroquine

maybe I will give it another try this time

my best wishes for you too dear Alex

Alex
Member
I find that 26.mg/kg/day is necessary, what was the dose used by you? Also metformin is greatly amplified anti-cancer when combined with aspirin or diclofenac or maybe even citric acid. https://www.ncbi.nlm.nih.gov/pubmed/26056043 Mebendazole would also be a great addition to those, still unaware of what the best dosage would be. If you are asking what the effects are, i cried tears of joy today, seeing how my mother is feeling better. No marker number. We are also using HCA, CA, ALA. If you feel something is out of place, i would go check blood, hormones, glands, they do play a big… Read more »
Emad
Member

I used 1g metformin only , with the dose you mentioned , it means I should use 2g daily

no coffee enemas unfortunately

you are totally right about the good food and bad food , they are really a major role in all this

there is no hyperthermia available here in our country but if my mother had the chance to be treated outside Libya , hyperthermia will be a good choice indeed

but after all I’m happy to see you happy man , nothing is better than staying healthy in this life 🙂

take care my friend Alex

best wishes

Alex
Member
Emad
Member

yes they are really interesting , I have watched all the episodes of The Truth About Cancer

sad we missed the chance to correct my mothers body when she was on hormonal therapy for 2 years

now after she heavily treated with chemo it become very hard , but still not something impossible

Alex
Member

I am curious what you would change if you had the chance to go back in time?
i know i would reconsider suggesting surgery, it proved to be a mistake, solved nothing. Anyway….

Emad
Member

sad that we can’t change the time

if I started to search alternatives since 2013 , probably I will go totally natural with my mother , treating the underling cause , correcting the body chemistry

now after we started chemo since 1.5 year , it begins to be so hard to do what we should do , cancer is more aggressive , and our country economic problems become disaster

Meech
Member
If I were to guess, I’d say that the tumour marker rising that much during the last cycle could be due to taking a rest from chemo for the blood transfusion. ie. Maybe the tumour marker raised even higher during the rest, but still did fall to 607 with the chemo. So what looks to be a case of chemo stopping working might not necessarily be the case. At any rate, even if this were the case, this tumour looks incredibly aggressive. I would look into some off label medication. Like Daniel had told me earlier, Diclofenac might seriously potentiate… Read more »
Emad
Member
Hi Meech thank you so much for your notice we did blood transfusion before and also the chemo delayed same as the last time and even they give carboplatin only with no Gemzar , but tumor marker only raised from 317 to 380 but the last time is totally different , I think like Daniel said , PPI are not a good choice with weak acids , this can describe what happen but really my mothers cancer is aggressive , and I can notice how its getting more and more aggressive every time , and I should blame chemo for… Read more »
Meech
Member
From what I’ve found online, Metformin’s nephrotoxicity can be attributed to its increasing risk of lactic acidosis. However, risk of lactic acidosis is incredibly rare (around 3-5 people per 100,000). It’s also important to note that the vast majority of patients receiving Metformin are also diabetic, which would indicate probably some deal of kidney damage in the first place due to high prevalence of obesity, hypertension, etc. With this patient group. So I don’t want to go out and say “Metformin is fine to take and low risk” because I’m not an expert, but I think checking out exactly what… Read more »
Emad
Member

metformin should be safe compared to most of the drugs , and really I believe I should return to use it again

sorry to hear that you have one kidney Meech

you are inspiring to all of us on the way how you are living and taking care of your self 🙂

Meech
Member

Thanks for the words Emad. Hope the new treatment strategy works out; make sure she’s drinking a ton of water daily with all of these things she might be taking.

Emad
Member

Thank you so much meech

Ergin
Member
Hi Emad, I felt that one day you will write those words.The rise in markers.Because it was stable. If you use salinomycin,it should be easy for you to use phlorizin or derivatives just before chemo. You must also read T4 depletion,for me it is one of the best in our hand for now. There is a serious and very good responce on breast ca.Please read it. I always find your comments in all treatments like chloroquine or mebendazole diclofenac.Where did they gone? Did you stop them?Or forget to write to your above post? You never used any angionegenis inhibitor as… Read more »
Emad
Member
Thank you always for your kind words and great help to our family Dear Ergin believe me I felt strong for the first time yesterday when I was waiting to receive the results I used to feel sick everyday when it comes to marker results I remembered how strong you have been to face the results each time 🙂 regarding phlorizin is there any good source you know about ? or its only available in chemical companies ? T4 depletion is one of my choices , i will study it more and be ready to use it regarding chloroquine ,… Read more »
Wondering
Guest

Hi emad

The more i read about metformin the mire convinced i am its a must

It affects both mito and nucleus, glucose level, igf…

Im taking berberine insteaf of metformin, similar impact

W

Helga
Member
Helga
Member

Phlorizin is found mostly in apples (skin) but also in Mexican oregano (dried): http://phenol-explorer.eu/contents/polyphenol/109

Wondering
Guest

thanks Helga.
I was thinking about adding something like this but Daniel wrote that with oral administration much of it leaves the the body in stool …so probably not too effective if not via intravenous way. pity.

Emad
Member

like curcumin , no chance for oral unfortunately

Helga
Member
I take turmeric with 10% black pepper and add also dry ginger. I dissolve all of them in soda water (or fizzy mineral water). I swear to you I can feel the effect. However, mostly probably against inflammation as I have not been diagnosed as having cancer (finally found a gynecologist here, who will examine me in early June – I wonder what women do here if they need one urgently, e.g. pregnant? one would think that you’d have to wait 3 months for an exam in some 3rd world country but they might have actually a better care than… Read more »
PaulF
Member

Helga

Sorry to hear of your situation. What country do you live in?

I find the black pepper really helps with the absorption of Tumeric and Curcumin. I have not thought of adding dry ginger, that would really help in my opinion.

Paul

Helga
Member
Dear Paul, it is a small country in Europe, overrun by the Soviets in 1968. It is fine but maybe there is a shortage of gynecologists/doctors here or perhaps too many women live in this city. It is a rather Kafkaesque situation 🙂 I am glad you find turmeric/black pepper also useful. I think that carbonic acid (in the soda water) also helps with the absorption. And ginger has a great anticancer effect in itself. It is worthwhile to combine it with citric acid. My bump in my belly greatly diminished since I am taking CA. Perhaps Ergin is right… Read more »
Alex
Member

X ray,
LOL,
Dear Helga.
When the doctors looked at my mother’s xrays they couldn’t see a thing…… not one.
Scanner showed the tumor very very clear.
Bone will show contrast, for a tumor to be more than transparent, it will have to be calcified.
The shape may look like something else, not a ball of tissue but some claw shape… etc etc.
Next to that shape you would have the soft tissues that are for the most part, transparent to xray

Many Thanks,
Alex

Ergin
Member

Hi Emad,
I wrote a message but gone.But not important,you know my feelings about you and your mother brother.
Please read this link.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4268104/

Ergin
Member

This is a summary table in that page.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4268104/table/tableA1/
They use cimetidine in all.I am sure Daniel will talk about this.

Alex
Member

Ergin, brother.
Still did not received that package from you yet.
How is your mother? How are you? You are online on skype but…. no answer.
Interestingly mother is feeling better with no DCA maybe the other things are doing very good for her.
Today she feels very good. More mobility, less inflamation.
I also add 100mg Mebendazole X3
And i alternate aspirin with diclofenac from day to day.

Cheers.
Alex

Ergin
Member

Hi Alex,
I hope it is not in the customs.I will send you the tracking number tomorrow.
Skype is open in office i think.
After my mother began mebendazole,diclofenac,celecoxib etc., her pain on bowel released.
May be it is because of the pain killer effect of them.Or they helped,i dont know.
Cheers
Ergin

Alex
Member

Ergin.
Today i cry tears of joy, seeing my mother feel better, i reminded myself of all the help i received.
It was a very nice day here for us, a rare event in my life… me crying tears of joy. Thank you!!! Daniel, everyone here.
don’t give up metformin bro, it helps very much. Vegan diet, no bread, oil, fat, very little fish 1/week same for egg.
Diet helps with bowel problems too. and enema.
Don’t forget the immune system.
1 fruit before food helps with bowel problems too.
Don’t forget water, good hydration

Best wishes,
Alex

Alex
Member

i can tell you what released pain in my opinion.
It was celecoxib because it stops COX, (fermentation) for aprox 4 hours. – Similar to aspirin.
http://cancergrace.org/cancer-treatments/files/2012/04/ASPIRIN-biology.jpg

Alex
Member

i am sure celecoxib is sinergistic with metformin

Emad
Member

yes cimetidine is also good and looks helpful , and can be found easily 🙂

Wondering
Guest
hi Ergin, thanks – i have heard about cimetidine from you and Daniel and i already bought some. it seems to have several anti cancer properties. @All, Havent you think about random pills having much anti cancer effect? there are reports showing that antibacterial pills, anti histamine pills, anti inflammation pills anti worm pill, anti malaria, blood pressure reducer pills, anti diabetes pills anti malaria pills, even anti acne pills have anti cancer properties. Maybe one with cancer should take ALL what she can bear from above pills and the result would be surprising, a real anti cancer cocktail. There… Read more »
ovidiu
Member

I would try metronomic chemotherapy plus lansoprazole or omeprazole, metronomic vinorelbine seems well tolerated, maybe add celecoxib.
But for the liver mets this may be not enough, the standard palliative choice for liver mets is radiofrequency ablation.

Ergin
Member

Hi Ovidiu,After learning this tech.from Daniel again,i am searching for cyroablation.
It looks better than RFA.
Does anybody has experience about it?
Because there is no bleeding after cold ablation in -40 centigrate,tumor seeding will be very low.
I like it very much but you can not use it on everywhere,like bowel.Necrosis is dangerous on some organs.

Alex
Member
Emad
Member

Hi Ovidiu

I’m always reading your comments , I’m learning things from you each time , your opinions will indeed help 🙂

i wish that we did metronomic chemo from the first days , before cancer become more aggressive

regarding celecoxib , (as a medical student) they used to teach us that celecoxib may damage the heart ?!

but some doctors don’t believe on this , what do you think about it ?

ovidiu
Member
@Emad: you don’t have to use a high dose of celecoxib, and only use if the metronomic chemotherapy induces Nfkb (like etoposide and cyclophosphamide do, I don’t know about vinorelbine). Other observations: the blood transfusions can contribute to chemo-resistance, that’s from my personal experience, after such a transfusion what previously worked (although barely) stopped working (CEA rose as without treatment). I believe that the blood may come from people who do this blood-giving for a living and their blood contains extra growth factors, which can increase angiogenesis and chemo-resistance. Gemcitabine is responsible for the low erythrocytes and platelets, and the… Read more »
Emad
Member
oh my ! That’s horrible , its too scary I feel like I’m loosing it >_< it really looks like blood transfusion is doing something wrong here as things started to change after the first transfusion ! or maybe its for another reason we don't know about we still didn't use Erythropoietin , I hope not to use it , but receiving blood is something we can't runaway from chemo will continue lowering the blood counts and we will need more blood each time , without blood we can't continue on chemo and we still far away from having another… Read more »
ovidiu
Member
I didn’t say that the cancer would become more aggressive after a blood transfusion, but after Erythropoietin. Growth factors in the blood would probably return to normal levels after a while, but IMO it’s likely that chemo won’t work soon after a transfusion. There is another thing, if your mother took antibiotics to treat some infection (due to poor blood formula), this can also decrease the efficacy of chemo. Well-balanced commensal microbiota contributes to anti-cancer response in a lung cancer mouse model. https://www.ncbi.nlm.nih.gov/pubmed/26125762 And if you are still going to use Carboplatin + Gemcitabine, maybe you can add Noscapine (I… Read more »
Emad
Member

Dear Ovidiu , sorry I forget something that maybe looks important but I’m not sure if it was the cause

actually we did the blood transfusion after 48 hours from Carboplatin + Gemzar infusion

we used to do blood transfusion at the end of the cycle but last time we did it after just 2 days

Emad
Member

I have to put Noscapine in my mind , things look more clear after your comments here Ovidiu

thanks a lot

Helga
Member

Hi Ovidiu,

do they add erythropoietin or that stimulating agents to patients who need/get blood transfusions? One has to be careful about it because it may increase thromboembolism: Reference

Venous Thromboembolism and Mortality Associated With Recombinant Erythropoietin and Darbepoetin Administration for the
Treatment of Cancer-Associated Anemia

Conclusions: Erythropoiesis-stimulating agent administration to patients with cancer is associated with increased risks of VTE and mortality. Our findings, in conjunction with basic science studies on erythropoietin and erythropoietin receptors in solid
cancers, raise concern about the safety of ESA administration to patients with cancer.
JAMA. 2008;299(8):914-924

Ergin
Member

Hi Emad,
Please read phlorizin post.You can use it 4 hours before chemo.
There are derivatives of phlorizin you can find in local pharmacies i think.
I am also thinking to use it next week.SGLT inhibitor.
https://www.cancertreatmentsresearch.com/phlorizinphloretin-a-strong-glucose-transport-inhibitor/

Emad
Member

I’m considering phlorizin and Sal , they seemed to be the best things to add with chemo

but really Ergin I didn’t know that I could find derivatives of phlorizin , you think they can work just like phlorizin ?

hope yes , I love to use it soon 🙂

Wondering
Guest

hey Emad
from above its clear that you helped your mom a LOT, maybe she would not be here without your actions.

chloroquine is cheap and would help in my view;
https://www.ncbi.nlm.nih.gov/pubmed/27060208

maybe avemar, wheat extract could help,:
https://www.ncbi.nlm.nih.gov/pubmed/15665622

pls check ogfr status in your mothers cancer, maybe ldn could help, in that regard pls search back daniels warning, :
https://www.ncbi.nlm.nih.gov/pubmed/23918871

how about 3-bp if things go really south?

Wondering
Guest

also…my new finding (for daniel its old of course) Griseofulvin seems to effective against BC too.

http://bmccancer.biomedcentral.com/articles/10.1186/1471-2407-10-213

Emad
Member
Hi wondering , thanks for your opinions and concern 🙂 yes i think I’m gonna add chloroquine and the other off label medications that may help regarding Griseofulvin , which one you think is the best : Griseofulvin or mebendazol ? i tried mebendazol 600mg daily for about 1 month , and didn’t notice any help , also not sure about the quality and about 3-BP , i really love and wish i can use it , but the big problem with it is that it could not stay in a good condition in a room temperature for few days… Read more »
Wondering
Guest

Re griseofulvin and mebandazole, im afraid there is no way to Tell, but they dont work exactly the same way. Im trying to get these both currently.

Re logistics and temp.. i have the same problem but i think i Will try if things dont get solved without it.

Emad
Member

I gave my mother mebendazol before up to 600mg daily , at that time we run out of DCA and the tumor marker climbed from 450 to 714 , it was a huge jump and I felt like mebendazol didn’t help in anyway , maybe I’m wrong

but I will see if I find a good source for griseofulvin here in our country

sad to hear that you are facing the same problems regarding 3-BP , I hope we both can get it one way or another

Helga
Member

Hi Emad,

This site claims 3-bp remains stable under ‘ordinary’ conditions. They are in India and it is already quite hot in India so… Here is the link: http://www.exportersindia.com/marine-agency-corp/ethyl-3-bromopyruvate-ukraine-1760446.htm

Emad
Member

it looks strange as other western chemical suppliers used to write that 3-BP cannot stay few days in a room temperature

I will look around again , my wish is to get 3-BP with Salinomycin , I feel that they are the only combination that can make treatment possible without chemo

veeni
Member

Hi Emad,

ketogenic diet is a good option to stop the cancer from growing. I am very convinced of its effect and believe it is a good boost for all the other treatments. There are lot of papers out there on this topic.

Kind regards,
Veronika

Emad
Member

Hi Veronika

you seem to know well about ketogenic diet , do you know about people who are doing both chemo and ketogenic diet ?

some how I feel like its hard for patients to stick with ketogenic diet while they are on chemo , I’m not sure but maybe you have some thoughts

Carl
Member
Hi Emad (sorry, I addressed you with the wrong name above), Is your mother taking any ”re-purposed” drugs on top her current treatment? It might not be as potent as the substances you are using, but thanks to the low toxicity and significant efficiency it could probably add a lot of value? As suggested above, Metformin is probably well advised. You could consider combining it with Statins and cycle Doxycycline/Mebendazole. This is the protocol the Care Oncology Clinic prescribes. Perhaps also consider bisphosphonates to address the bone mets http://www.cancernetwork.com/bone-metastases/bisphosphonates-prevention-and-treatment-bone-metastases/page/0/3. Dipyridamole is also a promising agent: https://www.ncbi.nlm.nih.gov/pubmed/22760522 “Fasting mimicking diet” to… Read more »
Wondering
Guest

hey Carl, thanks for the valter longo suggestion, some interesting read

Emad
Member

Yes I will use metformin

also my mother stopped bisphosphonates months ago due to the risk of osteonecrosis of the jaw , but she will return to it soon, the dentist made it clear that my mother can return using it without a problem

thanks a lot for you contribution Carl , you and other friends help here is amazing too 🙂

wish you the best

Ergin
Member

Hi Emad,Please read it up to end.
It does not have a killer effect but it changes resistant cells to a sensitive level totally after 72 hours.
”Low molecular weight heparin tinzaparin antagonizes cisplatin resistance of ovarian cancer cells”
It helps on 100’s of genes related to cancer.So the other cancer types should benefit from it.
https://www.researchgate.net/publication/280693552_Low_molecular_weight_heparin_tinzaparin_antagonizes_cisplatin_resistance_of_ovarian_cancer_cells
My thoughts are very positive for tinzaparin.I wrote it 2 times on heparin post but no one is interested including me:)
But with Daniel and alltogether with friends,we can work and search for it.
I think tinzaparin deserves respect.
Kind Regards
Ergin

Emad
Member

yes it really worth trying , i hope i can find it in the pharmacies here

i have to say you are doing a great job searching a lot these days bro 🙂

sirsna
Member

Hi!

Of course, Ketogenic diet is “must try”!
I followed Patricia`s Daly advices! (check google and facebook).
I had times when I followed it quiet strictly (measuring ketone blood levels, glucose), scaling products etc., but some times only low carb. But I had in my opinion serious side effect – blood cholesterol levels went UP (my total cholesterol was 9,…mmol/L) and I have some progression in my bones in theese 2 years. Among other things, Now I am on statins.
Be sure what numbers You want to see in blood samples.
off label must be more effective in my mind!

kind regards,
ieva

Emad
Member

you remind me of some cancer survivors who beat cancer by going total natural but not with ketogenic diet

like Chris Wark , he actually against ketogenic diet and he claimed that balanced diet is much more better

hope you are doing good , I hope you beat up cancer soon , my best wishes to you

Alex
Member
Chris Wark is an opportunist. He makes claims to potentially millions of people who are reading, watching, listening and doing. People go blind into what he says and promotes without shame certain brands, products. He specifically promotes the use of certain brand named devices, supliments etc etc etc. Little to no science. Aggressive commercially oriented cult followed unable to touch kinda thing going on there…. While i appreciate his latest series, oriented towards the natural…. i can not help but notice the commercial intentions behind his efforts. He’s doesn’t seem to be doing it to help people but rather to… Read more »
veeni
Member

I guess the most important thing is to maintain low blood glucose (3mmol). It is what Dr. Seyfried recommends.
This is also achivable with normal ketogenic diet. Actually I am in touch with few breat cancer women who are on a normal ketogenic diet and either they are cancer free or the metastasis are stable.

@ieva cholesterol is not a bad thing. See here: https://www.ncbi.nlm.nih.gov/pubmedhealth/behindtheheadlines/news/2016-06-13-study-says-theres-no-link-between-cholesterol-and-heart-disease/

kind regards,
veronika

veeni
Member

Sorry, I ment blood sugar 3 mmo/L is the recommendation from Seyfried.

sirsna
Guest

HI, Veronika!

Yes, Seyfried`s recommendation is blood glucose 3 mmol and ketone levels in blood 3 or more (starvation ketosis). That would be ideal proportion. All is about glucose ketone index:

https://optimisingnutrition.com/2015/07/20/the-glucose-ketone-relationship/
http://nutritionandmetabolism.biomedcentral.com/articles/10.1186/s12986-015-0009-2

I don`t understand what You mean by “normal ketogenic diet”?

I am not interested in herat desease and high cholesterol, my point is to minimize everything, who can drive cancer.
And that is not only glucose, especially, in advanced cancers.

kind regards,
ieva

Meech
Member
When I spoke with Dr. Seyfried, he didn’t outline what blood glucose values you should be getting. This was his quote: “You can gage the efficacy of metabolic therapy by measuring your daily Glucose Ketone Index (GKI) while under a medically supervised ketogenic diet. You simply divide your blood glucose value in mmol by your blood ketone value in mmol. However, most blood glucose meters provide glucose values in mg/dl. You simply divide this number by 18 to get the glucose value in mmol. It is our view that therapeutic efficacy will be potentially best with GKI values as close… Read more »
sirsna
Member

You are right, As I mentioned above, in the Keto diet one of the focuses is on glucose Ketone Index.

Emad
Member

I wonder how much it may take to see effect from ketogenic diet ?

and is it easy to stay in the proper ketone levels or its sometime going out of control ?

sirsna
Member
It takes few days for body to start to make ketones, it like transitional period, maybe with keto flue like symptoms. Dr.Seyfried sugest just 3 day fasting and then You are switched :). I did not fast for 3 days. I followed carb restrictin to 20g/day, protein ~60-100g/day, fat ~100-120g/day. My ketones were ~1-2mmol, but I mentioned good ketones number growth when I combined it to intermittent fasting – my ketone numbers went to 3.5 or even higher and i felt very good and clear minded. I liked it. At the first time body will tend to go back to… Read more »
Helga
Member
Dear Emad, I am not sure if Daniel already mentioned this but DMSO is something that is also worth to look into: https://www.cancertutor.com/dmso/ Allegedly it is a fantastic solvent, it will penetrate the skin and whatever you add to it, will be delivered to the tumors with the help of DMSO. I have never tried it but I come across it every now and then on alternative cancer treatment websites. It will work with both acidic and basic components. In fact the concept “pH” does not apply to it. It will work well with colloidal silver. Some places cesium chloride… Read more »
Helga
Member
Yes, that “serious cancer center” again turns out to be Sloan Kettering Memorial Cancer Center, told by Mercola: http://articles.mercola.com/sites/articles/archive/2014/10/18/laetrile-cancer-research-cover-up.aspx SK buried its related research but there are some more recent articles authored in Germany and other countries. Here are just a few of the more recent studies that substantiate Dr. Sugiura’s work: August 2014: In a new German study, amygdalin dose-dependently reduced growth and proliferation of bladder cancer12 May 2013: Amygdalin inhibits renal fibrosis in chronic kidney disease; researchers conclude it is a “potent antifibrotic agent that may have therapeutic potential for patients with fibrotic kidney diseases”13 February 2013: Amygdalin… Read more »
Helga
Member

ps. There is quite an interesting story at the same site: http://www.apricotsfromgod.info/mystory.html
The guy controlled his kidney cancer for 25 years with apricot seeds. He has been in jail in the meantime for selling or propagating the seeds during which time his cancer came back. An incredible story!

Alex
Member

Dear Helga,
With all respect i write to you.
Don’t trust everything written on cancertutor
Also, apricots as seeds would have to be ingested something like 2kg / day for any terapeutic effect. *let’s be real here*
The extract, iv etc. is extremely expensive, at least here where i live, and as i understand it…. even that is weak for cancer and not something someone would be able to sustain as treatment for very long due to financial reasons.
It sounds to me that Diclofenac would be a more powefull against cancer https://www.youtube.com/watch?v=OjkzfeJz66o

Best wishes,
Alex

Wondering
Guest

I agree.

Probably there is some truth in b17 properties but I have the feeling its being “oversold”, there are peole who keep advertising it, there are shiny webpages around it, price is high ( you can buy lots of stuff with more proof behind that cost 1% of laetrile’s price).

I even hate the fact that advertising people call it a vitamin – while its not.

eating apricot seeds was a great fun though when we were children. Some adults kept telling us not to eat more 10 per day, we never counted.

Alex
Member
i love apricot seeds, as a kid and now. I ate a lot of them, they didn’t even give me indigestion so for me in my personal opinion they are not poisonous at all. Tooth paste is more toxic than apricot seeds, so it seems to me. As far as them being anti-cancer, i seriously doubt it. It’s being promoted all around the internet that eating a few apricot seeds a day will make your terminal cancer go away rofl. Oh and don’t eat too many because your cancer could go away too fast lol. That hidden truth that nobody… Read more »
Helga
Member
Dear Alex, Naturally, I approach everything with a critical mind, that is why I cited a reviewer’s comment on a scientific manuscript submitted to a scientific journal. However, could you expand on your view as to why you think cancertutor is not to be trusted in particular? Do you have any bad experience with it or with DMSO? Re: apricot seeds, it in itself should not be expensive or difficult to find. Perhaps laetrile is oversold/hyped indeed. What makes you think that we would need to consume 2kg to make a difference? It would be nice in general if people… Read more »
Alex
Member

Also check out this about B17 https://www.youtube.com/watch?v=w8KPhT2xGL4

Helga
Member
There is another interesting substance, called ursolic acid: http://www.tbyil.com/Oleander_Cancer_Discussion.htm There are several recent scientific articles proving its anticancer effect, e.g.: http://www.nature.com/articles/srep14570 “Ursolic acid exerts anti-cancer activity by suppressing vaccinia-related kinase 1-mediated damage repair in lung cancer cells Many mitotic kinases have been targeted for the development of anti-cancer drugs, and inhibitors of these kinases have been expected to perform well for cancer therapy. Efforts focused on selecting good targets and finding specific drugs to target are especially needed, largely due to the increased frequency of anti-cancer drugs used in the treatment of lung cancer. Vaccinia-related kinase 1 (VRK1) is a… Read more »
Emad
Member

Thanks a lot for your comments and help Helga

I will take a good look on Ursolic acid , I wasn’t aware of it until now

but regarding apricot seeds , I wonder if its better to take about 30 seed daily or to get laetrile as IV ?

Alex
Member
Alex
Member
Helga
Member
Hi Emad, I am rooting for your success at treating your mom. I didn’t know that you are in Libya and a medical student. Very interesting. We in Europe hear only sporadically about your country and usually only bad things. How is life there these days, I wonder? Re: ursolic acid, allegedly this is even better: https://en.wikipedia.org/wiki/Betulinic_acid For its source I recognize only rosemary in the list and there is this flower: https://en.wikipedia.org/wiki/Pulsatilla Allegedly it is toxic when ingested in high amount. This brings me to my theory: quite often cancer is treated successfully with weak poisons. Like apricot seeds… Read more »
Helga
Member

Ah, didn’t realize that thujone is named after thuja: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3106972/
“Thujone-Rich Fraction of Thuja occidentalis Demonstrates Major Anti-Cancer Potentials: Evidences from In Vitro Studies on A375 Cells”

Helga
Member

Thujone is toxic in high amounts: https://en.wikipedia.org/wiki/Thujone

It is the infamous ingredient in absinthe, a liqueur, which was banned for a while due to its (perceived?) toxicity. Absinthe was very popular in the early 20th century.

Aha, thujone is also found in Artemisia!

Emad
Member

Hi Helga

thank you for your concern

unfortunately things are getting worse each day here in Libya , controlled by a bunch of criminals who have the power and the ability to make things better , but they only do every thing to make things worse

God give me strength

————————-

regarding Allegedly and ursolic acid , they are interesting and new to me , lot of things to about them , I will put them in my mind

thank you so much

Emad ^__^

Wondering
Guest

hey emad, offtopic, yes, sad for you guys, hope it will be better in your lifetime. our government in hungary is also a bunch of criminals (worst in eu)but of course different level. be strong.

Alex
Member
Emad
Member

thank you dear Alex

I saw the videos , interesting

regarding laetrile I’m not sure if the oral version is worth trying like the IV version

but the problem like you said that IV version is expensive

regarding Oleander , this one Ergin used in the beginning , is it used as IV or oral ?

and which are better ? and how about there prices ?

I was aware about Oleander , but not that much

but really I should take a very close look on it , it seems helpful to so many peoples

Alex
Member
Ergin may help more than me on that….. Personally i think it makes sense to first get your mother feeling better with adequate nutrition, detox, hydration. Too much treatment…… Get her feeling better, relax a little… “Zoom out” as Daniel likes to say. More testing for other things, not just tumor markers. There are many treatments… But they won’t work if you go blind into them, you have to know more about your mother’s bio-chemistry, hormone activity, immune system etc etc etc. I personally believe that “modern medicine” is unaware of the full view. So a broader view is needed.… Read more »
Emad
Member

yes sometimes we need to be relaxed and regroup our thoughts so we can act better and take better decisions

you said it all man thanks a lot

I remembered something btw , I was about to use DCA with HCA + CA , but lost the road again after I read about possible interference between CA and DCA

maybe I will take the risk and combine them all , but looks crazy decision , not well studied and against your opinion huh 😀

Alex
Member

I dont know everything. so maybe what you feel or think is better.
Instincts were telling me, based on the science explained to me by Daniel, that DCA+CA, are not a good idea.
But out of respect and being aware of how little i know about all of this, that i could be wrong, i decided to shut up, a small mistake….
Sometimes it’s best to look stupid, ask stupid questions, you never know….
1000 stupid questions 1 Genius question – Nobel Prize, etc etc etc. lol

Alex
Member
Instead of B17, Layetrile, Amigdalin, Apricot Seeds, i would go with a good old diclofenac, aspirin, paracetamol etc. They are 10XXXX times better, that’s how i feel. Waste of time, money, hope, energy etc. Maybe the IV version would do something….. something…. idk, not interested in throwing money at it. Did enough of that on other useless things already. Such as Graviola, Paw Paw They are all marketed as wonder miracle cures. “Don’t take too much, you may get rid of your cancer too fast, watch out!” Sometimes i hate this planet, no wonder the aliens aren’t coming to visit,… Read more »
Emad
Member

I totally agree with you

and regarding diclofenac , I’m just worried about the long term side effects , what do you think ?

its a good choice when also using DCA , I may consider it but not sure how long we can stay on it

I really hope we can meet each other one day , I really hope that

this blog is like our home 🙂

Alex
Member

What i can say is that my mother was taking diclofenac before diagnosis, relative high doses, 200mg/day i think, for about 6+ months
She had existing heart problems, so if that’s not an issue maybe one could go higher.
It’s also the thing that i believe has made the tumor stay in only one place while growing. the doctors were surprised that she didn’t have massive mets, They did see something but were uncertain…..
Cancer cure? i think not….. Something that will help?! for sure!!! Risks? Always….
May wanna check out simvastatin while you zoom out a bit from all the chemo rush.

Emad
Member

Thank you so much dear Alex

I started to give my mother metformin , around 1.5 to 2 g / day

maybe next time will add diclofenac and chloroquine

the only long term side effects I’m worried about when using diclofenac is being hard on the stomach

but I feel it can help when always I’m reading about it

hope to always hear good news from you 🙂

Alex
Member
Start slow with metformin, you don’t want her feeling bad, migrenes. IF you get that, give her something sweet If you are worried about stomach problems, i believe disolving it prior to swallowing with food, may help. We alternate Diclofenac day, Aspirin day. Diclofenac Day, Aspirin Day but always with metformin Omeprazole also helps protect the digestive system I am sure we all have a lot to learn from each other. Mother is feeling good, we developed a rating system for pain, 0-10, she is at 1.5 she is not taking heavy pain killers on opium or morfeene etc. We… Read more »
Wondering
Guest

Hi emad, you can buy diclo combined with a stomach protector, i dont remember the name but u Will find it. Less risk then..

Emad
Member

Thanks a lot Wondering

I hope this will help while on diclo

Helga
Member

Hi Emad,

I am not sure if your mom takes omega 3 but acc. to Daniel’s article there was a signif improvement of late-stage breast cancer patients by taking it: https://www.cancertreatmentsresearch.com/1443/ He suggests that all patients take it. Oh, I remember you said she takes Budwig but maybe not in a high dose. Daniel says some people take 15 grams per day.

Emad
Member

we used to take Budwig with good doses suggested by cancer turor , but my mother didn’t tolerate its taste easily and sometimes started to vomit it

but I hope omega 3 capsules can be as good as flaxseed oil

I keep wondering why there is no such thing like budwig diet but in capsules !?

it should be helpful for the entire body in everyway

Pouya
Member

apparently EFA’s Companion Nutrients is supposed to make one flaxseed oil water soluble. I didn’t try it so I can not vouch for the efficiency but it was one the things I always wanted to get since Budwig diet is indeed hard to maintain for a long time.
https://www.bionatures.com/products/efas-companion-nutrients-complex-500-mg-180-capsules-2-month-supply

Pouya
Member

I meant one teaspoon of flax oil.

Emad
Member

Thanks a lot brother Pouya , this one could really help

its really a very good thing to be able to have something like budwig in capsules

hope you are doing good , we will talk soon 🙂

Helga
Member

Hi Emad,

We make Budwig with added ingredients. We use a mixer and add green leaves, like spinach, arugula, etc. I also add, for taste, and health, parsley, sage, rosemary and thyme (really, but here is the Simon & Garfunkel song, called Scarborough Fair: https://www.youtube.com/watch?v=cfA8rz5PKrA with these 4 plants :-))

Or you could also add fruits if your mom can take/tolerate that.

Best,
Helga

Pouya
Member

btw if your mom has a dental amalgam be careful with ALA as it is a mercury chelator. (as far as i know)

Alex
Member

Metal fillings are toxic and should be removed right away. 🙂
So i hear…

Emad
Member

yes they should be removed , but carefully

i read in cancer totur that if the mercury amalgams not removed correctly , then probably it will make things worse and a lot of mercury will fall or be swallowed

also what he said that it may cost around 10,000 dollars to remove them in the right way as he explained

here in our country you may get infection easily for just a normal dental work like cleaning your teath !!

Emad
Member

I should put that in my mind as my mother has many mercury amalgams in her teeth !

Alex
Member
cancertutor is exagerating a lot….. a lot….. A dentist (especially if made aware) with a little incentive, will do the job right for you and your mother, no need for 10.000$. The less mercury the better. 🙂 The less toxins the better 🙂 To be honest after all the chemo, i kinda feel mercury amalgams are the smaller problem to address at this time. If you and your mother wish to stop chemo, you have to detox, and detox and detox and detox and detox….. ………. ………. ……. First there is the intoxication in the body to address, then there… Read more »
Emad
Member

I agree , and with that our first goal in our treatment plan is to find a better way to stop cancer other than high doses of chemo

its not easy at all , hope we can somehow do it

jondoeuk
Member
”In a clinical pilot study with nine breast cancer patients, diazoxide was used at a dose of 200–300 mg per day [4]. For inclusion, maximal tolerated fasting glucose level was 110 mg/dL, and 180 mg/dL after an oral glucose load with 75 g. The best response was seen in a 60‐year‐old woman, who had glucose levels of only 56–105–115 mg/dL in the oral glucose load test. After progression of her cutaneous metastases during tamoxifen treatment, she was supplemented with 200 mg diazoxide per day and her fasting glucose levels rose to 90 mg/dL. Partial remission with this combination ended after… Read more »
Emad
Member
Tumor marker results today it shows a slight increase on ca15-3 , from 608 to 611 but also I believe that the markers actually decreased , because we delayed the chemo 5 days , and the markers were progressing incredibly fast , so I think they become more higher than 608 before chemo I can see we stopped the progression , so this is good news for me but that bad news is : DCA will rest in peace , after using it for about 1.5 year , it lost its effect also the neuropathy become worse , so once… Read more »
Emad
Member

Dear all

2 weeks later , CA15-3 was 611

since that time , we did blood transfusion in the same day of the result , then only DCA for 2 weeks

today, in another lab test , CA15-3 show high elevation to 1443

also liver enzyme test is so much concerning me

AST = 95
ALT = 59
GGT = 163
ALP = 129
Bilirubin is normal
all the other tests are normal

tomorrow the CT Scan and PET Scan results will come , i will share the results soon

Jcancom
Member

Dear Emad, I am reading these comments and I feel so badly for you.
You have done such a great job and this is not fair.

Emad
Member
Thank you always J for your care and kind feeling we will do our best to re control things again today the oncologist did see our results , she was worried about the progression that happened she did contact some other specialist and then decided to change the chemo to another new combination we used to take Carboplatin + Gemzar , and the both are heavy on the bone marrow which always lowering the blood counts and then delay the chemo and require blood transfusion the new combination she suggested is (Cyclophosphamide 1g + 5-FU 1g + Methotrexate) every 3… Read more »
Emad
Member

I send a comment which I can’t see it

I’m sure Daniel will pick it up from the spam filter

Alex
Member
Dear Emad. I am filled with pain over many personal reasons and it kills me to hear things aren’t going well for you and your mother despite all the huge sustained efforts. I wish i could do more than just write a message. Perhaps there’s something to be done still. Local Hyperthermia, DCA+ the rest I always wonder why you didn’t go for oral administration of DCA, daily, why no vitamin B1, why …? The small things like diclofenac, aspirin, metformin, they all have their major contribution. From reading your story i gather DCA has been more effective than chemo… Read more »
Emad
Member
Hi Alex the capabilities here in Libya are so weak , no hyperthermia available , they even don’t know about such thing , I’m still doing DCA IVs , but its not helping like before what I know is that IV DCA is better than oral , I’m still giving my mother B vitamins , I know the potential of NSAIDs but I’m not sure if its okay to use them continuously , also my mother is taking metformin now for over a month , 2g daily LDN is not available I wanted to use it but I’m waiting for… Read more »
Wondering
Guest

hi Emad

good luck with anything you decide to go for… hyperthermia i am considering currently.

how come this polish opportunity? is there an agreement between the governments?

Emad
Member

No agreements at all

but one of the governments which has some power actually are still having the ability to give some cancer patients an opportunity to have a treatment in Poland , I don’t know why Poland exactly

but still it needs some time to complete the regulations required for having this help, I hope the clinic they are sending us to it have more than just the nasty chemo

Meech
Member
Hi Emad, I couldn’t reply to your other comment there so I’ll reply here. When he says “three to four monthly sessions”, he likely means 3-4 in one month. I’m not 100% on how effective one session every three months would be; I think you should email him. He answers emails within a few minutes usually. About the procedure: it’s mostly painless but a bit uncomfortable. You may feel a bit of pain first with the local anesthetic needle, then with the initial puncture into the artery, which doesn’t last a long time (a few seconds), and then some discomfort… Read more »
Wondering
Guest

damn cancer, Meech. I cheer for you.

I have no visible met and currently normal markers but i feel worse than you (constant back pain, neuro problems). I will have a brain MRI soon after 4 negative spinal MRIs.

i fear i have leptomeningeal carcinomatosis – the only thing worse than a brain tumor.

what about using 3-bp in your case?

Meech
Member
See if the treatments you did can leave permanent damage to those systems. Use of platinum based chemotherapy can lead to neuropathy. Radiation to those areas can also lead to more long-term problems when scar tissue builds up in the area. Hopefully, as debilitating as it may be, your issues are iatrogenic and not pathological. I haven’t actually really considered 3BP and it’s mainly due to the knowledge needed in terms of preparation and administration, as well as not hearing enough positive case reports to warrant such a huge commitment. There is a local clinic here offering the treatment (or… Read more »
Wondering
Guest
I had lots of cisplatin (worked big time for my only visible tumor and did not have typical side effects other than hair loss) so oncologist blamed everything on it at first. After round 1 (september) i developed back pain and from November I started having mild but clear CNS symptoms (not peripherial neuropathy which is normal with Cisplatin). Some of these remained as they started out – some of these are stronger now. Lets hope im one in a million who reacts to cisplatin like this but im realistic (and hence pessimistic) – i think its cancer.
Emad
Member

Thank you Meech , your comment is so helpful , I will always wish the best

I have a little question , did prof Vogl asked you to give him a CD (latest CT scan results) before starting on TACE ?

if yes , then did you uploaded the data in the CD then give him the download link ?

or you did transfer (ship) the physical CD to his location ?

I know its confusing but I don’t understand why he can’t just download the data I gave him

Meech
Member

He did ask for the images and some reports. I shipped the CD to his physical location, these CT scan files tend to be too large to send via email.

Emad
Member

Oh my !

I thought we can visit him after 10 days , but sending the CD it self can take a week or more

like we are living in 199x , they cant just download the files or am I wrong ?

Ergin
Member

I highly believe in dapagliflozin.Please look at the photo below.There is no glucose inside tumor.It is sold in pharmacies.
I am planing to work on dapagliflozin and create a forum topic metformin vs dapagliflozin vs 3BPvs 2DG with your help friends.What do you think?
http://www.pnas.org/content/112/30/E4111/F11.large.jpg

Emad
Member

compared to phlorizin what do you think Ergin ?

could it be like it or its less potent ?

Ergin
Member
Hi Emad, Phlorizin is very special.There is a term called phlorizination in science world. You use it once before chemo,perfect,i like it.But not oral and you know how hard to use,a very long iv infusions,control control. (But 12-24 hrs is enough)Probably using it with 3BP makes the treatment very strong.In phlorizin patent they use similar. Others are oral drugs and after chronic use of drugs,i think you reach your goal after days or weeks like all other treatments.At the end there is no glucose inside the tumor which expresses SGLT.It depends on us how we use it.What dosage?Which type? I… Read more »
Emad
Member

I will consider it next after Sal + 3-BP or maybe I will add it to increase effectiveness

but Dapagliflozin it self I think its not available here in Libya

its worth a try

sirsna
Member

“We find that Canagliflozin, but not Dapagliflozin, inhibits the proliferation and clonogenic survival of prostate and lung cancer cells. ”
http://www.sciencedirect.com/science/article/pii/S2212877816301314

Ergin
Member
Hi Sirsna, Daniel found that article before,this article really downs my motivation.In some of its sentences it says,glucose deprivation is not enough. Yes we know that and we want to use glucose inhibition for enhancement of treatments and slowing cancer and in some cases it kils cancer.What i learned from months is not to trust to all papers.There are some derivatives of SGLT inhibitors and i like them all.I found Only Dapagliflozin in pharmacies here, But Canagliflozin looks better. Daniel has already created a perfect post about phlorizin(SGLT1+SGLT2)but no one is interested. So i found a way to attract peoples… Read more »
Wondering
Guest

Hi Ergin,
i believe the disinterest arises from the circumstance that most people can’t IV themselves and dont have open minded doctors. in my country doctors strictly rely on protocols – i am surprised to see that turkey is more liberal in this aspect.

Helga
Member

Hi Ergin,

look at this page, it seems that some online pharmacies also sell canagiflozin in Turkey: https://www.pharmacychecker.com/brand/price-comparison/invokana/300+mg/

Even though I am not sure what that means. But, it being a tablet, it should be possible to buy it online anyway. Although not cheap, one pill is about 4-8 US $.

Here is a nice article about canagiflozin: http://www.sciencedirect.com/science/article/pii/S2212877816301314

Helga
Member

Here is a nice article about canagiflozin: http://www.sciencedirect.com/science/article/pii/S2212877816301314
“The diabetes medication Canagliflozin reduces cancer cell proliferation by inhibiting mitochondrial complex-I supported respiration” Oops, I may be citing the same article that Sirsna already did, sorry. But it is interesting because it also further elaborates on the mitochondria – glycolysis conundrum, namely, that mitochondria are quite functional in cancer cells.

Emad
Member
New update today , my mother did her first TACE with prof Vogl in Germany both my parents are there , I’m still here in Libya the procedure didn’t take more than 10 minutes , there was a lot of patients there from all over the world my mother is feeling good , prof Vogl said that we made it to TACE in the best time , and glad we didn’t come late I wonder if the tumor did change since the last systemic chemo , i hope the systemic chemo did some positive effect also prof Vogl said that… Read more »
Alex
Member

Our good wishes go with your mother, family and you dear Emad.
Estimated costs for TACE?

Emad
Member

thank you dear Alex , my best wishes also for you and your dear mother and family to always stay healthy and happy

the total cost for 1 intervention including scans , tests , chemo drugs , all is about 3900 euro

how things are going with you ?

Alex
Member

Thank you very much.
wow at that cost. 🙁
My mother is having pain…. however it goes away with diclofenac, no problem.
The pain appears to be caused by treatment. Diclofenac did nothing in the past with regards to pain so this is new.
Neuropathy just occurred today. This would confirm that oral treatment works with regards to absorption.
Took almost a month for this to occur. Markers grew but it would seem they did so at about 50% slower.
We’re getting a scan done soon and the much awaited story will also be available here soon after i guess.
Best wishes there, good luck.
Thank you!
Alex

Emad
Member
yes the cost is high , our only chance to continue TACE is to have a help from our government which is somehow possible but also hard as I said before , my mother did also felt pain after DCA for days , she felt pain in her bones , also she was taking DCA with chemo at that time , and the bone mets did shrink and become very small , and since that time the bone mets didn’t change and become stable for more than a year , and it still stable until now I hope to hear… Read more »
Emad
Member

These 2 images are from the latest scans done in Germany , I don’t know if its from MRI or CT Scan , the liver tumors are visible and clear , I can’t know if its bigger from the last scan done 2 weeks ago or its smaller

comment image?oh=cc55f952dc907db0ebd448a39af94465&oe=59BC830D

comment image?oh=685394cdece867e8bc8c39c2cd704f55&oe=59AEBB0B

but I have a good feeling that we can make things better soon

the incoming days I will do my first 3-BP + Sal treatment , its time for having a new road

I wish the best for all of you my friends just like I hope the best for my self 🙂

Helga
Member

Hi Emad,

Are they taken before or after TACE? Or one before, one after? How is your mom feeling after the procedure?

Best,
Helga

Emad
Member

they do MRI before , then CT Scan after

I don’t know if the images are from MRI or CT Scan but it doesn’t really matter , the tumor will not change at all in few hours nor in days

next TACE session they will do MRI and CT Scan again so at that time they will know what did happen with the tumors

my mother felt nauseated for 2 days after the procedure , nothing else , she is fine now

thank you for your concern Helga

I wish for you a long happy healthy life 🙂

Alex
Member

Huge problems there saw the photos. Truly sorry, very bad.
Still i hope in your plans you also incorporate organ support elements. Specially those organs that were affected or are affected by the treatments / tumors.
Take care,
Alex

Emad
Member

I thought I put a comment , looks like an error happened

Alex
Member

What error?

Emad
Member
I put a comment but an error happened so I have to type it again I don’t know if I’m making mistake and if I’m thinking in the right way , but I have some fear of using supplements that could protect the liver , fear that it may protect cancer as well maybe I’m taking it wrong , but also I feel the best way to protect the liver is to eliminate liver tumors fast we will do our best to make things better I hope your dear mother is fine these days , I will pray to hear… Read more »
Alex
Member

Thank you i hope for the same in your case.
The neuropathy got worse, i am in doubt about Vitamin B1, i don’t know how to find out if that would help or worsen the situation in my mom’s case.
I can confirm it works better with coffee, DCA i mean. (as in, there is more pain when coffee is drank)
Pain is still there, lymph node is larger and larger…. don’t know exactly what to believe but i am trying to be optimistic.
I guess we’ll find out soon.
Take care, A great weekend to you and our friends
Alex

Emad
Member

can you please share the dose of DCA and B1 you give to your mother ?

also the other signs like pain and lymph nodes getting larger may not be a sign of disease progression , there is a lot of things that may cause the same thing , so don’t just put in your mind that cancer is progressing

you can’t just think only of the worst scenarios , you need to feel optimistic

wish you always the best dear Alex

Alex
Member

2000mg / day for DCA, but taking a break to lower neuropathy.
No B1 because of uncertainty. (some expression i forgot the name of)…… kill or boost.
We try our best to be optimistic.
Cheers
Alex

Emad
Member

i don’t know the weight compared to the dose , but its some how near the high dose

not using B1 will help cause neuropathy that’s what i know , I’m always giving it and with high doses , nearly 700mg/kg of B1 every day

Helga
Member
Dear Alex, I just read that inositol, a cancer-fighting molecule is also good at treating neuropathy! I hope you can look into this and find out more. My internet bytes are running out for now but will be back tomorrow. I hope the best for your mom! My mother may also suffer from cancer. She feels extremely weak after every meal. Today I prepared her a drink from citric acid and goji berries I ground with coffee grinder plus dried grapefruit pectin, which I also ground. She felt a lot better after drinking it! Goji berries are known to have… Read more »
Wondering
Guest

nice summary re inositol, no intention to advertise 🙂

http://us.myprotein.com/thezone/supplements/what-is-inositol-benefits-side-effects/

Ergin
Member

Hi Emad,
I dont understand the happenings.Where is mom now?Tace finished?
And what about the results?Stable in 2 days or weeks from CT?

Emad
Member

my mother did get back 3 days ago , TACE is a small procedure that only took 10 minutes to finish

everything is fine , they determine the effect until the next procedure which should be 4 weeks later

at that time they will do MRI again so they can compare it with the previous one

for now we will continue on systemic chemo like always , maybe in the next week , and until that i will do Sal + 3-BP

aren’t there any new results about your mother ? hope to hear always good news

Emad
Member
Regarding blood counts (CBC) for my mother : after 1 week of doing systemic chemo (CMF) , we did CBC test WBC : 4.5 HB : 10.3 Plat : 145 then she did her first TACE session (chemotherapy used is Mitomycin C and Cisplatin) after 2 weeks of TACE + few shots 3-BP + Sal , we did CBC test and it shows some decrease in counts WBC : 4.2 HB : 9.7 Plat : 52 I’m somehow confused , what is most likely the cause of this ? is it the systemic chemo cause this even when the first… Read more »
Ergin
Member

Dear Emad,
I wish i knew the answer.But your work is wonderful,awsome.
I wonder after 3-BP did you see any side effect?Did you look for blood glucose also?

Emad
Member
No I didn’t look for the blood glucose also I can’t notice any side effects , I’m giving her 160mg as IV , and doing my best to let it stable my protocol now is less aggressive day 1 : 3-BP day 2 : nothing day 3 : 3-BP day4 : nothing day5 : Salinomycin day6: nothing also when chemo is applied , I’m giving my mother some rest from 3-BP and Sal also I stopped giving her DCA completely , she hate it because of neuropathy in her legs , even when she know that chemo is the main… Read more »
Ergin
Member

Thanks Emad for your answer.I will need your help on how to prepare phlorizin and 3BP.
I only could talk with dr for 1 minutes this week.He said i will not take responsibility with preparing and using phlorizin.
But he will use if we can formulate it.Do you know how to sterilize.The products comes from sigma etc are not steril i think.

Emad
Member
Hi Ergin I don’t have that much information on how to prepare phlorizin , I think its documented in the article in this blog also for 3-BP I’m only doing like Daniel mentioned in the 3-BP article , mix it with sterile water until no powder is visible at all , then pull all the 3-BP solution to the syringe now the syringe contains the 3-BP solution which is may not be sterile throw the needle if its used , mount the 0.2 um sterile filter on the syringe , then place a new needle on the other side of… Read more »
Emad
Member

I have a news that is not good , and its not related to the treatment effectiveness

looks like our chance to get a visa to Germany is very difficult this time

even when we managed to have a financial help from the government , the visa is a big problem that may stop us from continue the other TACE sessions

so frustrating this annoying world is crazy

Alex
Member

Come to Romania, here you get visa easy.
Problem is, getting treatment is unlikely.

Emad
Member

Sadly its not schengen visa , so it can be only for Romania

I’m interested to go there but only to meet friends like you and Daniel not for treatment 🙂

Helga
Member

Hi Emad,

couldn’t you get a supporting letter from your doctor in Germany to get a visa? What an upside-down world/country (Germany) where they took in a million migrants without any background checks but not you, a law-abiding, educated person with medical needs! Let us know if we can help to write supporting letters. After all, even the bureaucrats are human beings…

Best,
Helga

Wondering
Guest

i can help with German translation if needed.

Emad
Member
We still didn’t do any systemic chemo after TACE done 3 weeks ago the platelets levels are still very low , also WBC dropped a little bit more !! when I read some articles about TACE , they talk about chemo is being stuck on liver region for about a month I don’t know if the chemo is still there and working which is causing a slight drop on blood counts but I can’t understand what is the reason the only thing I’m doing now for 2 weeks is giving 3-BP and Sal , my mother feels like they are… Read more »
Wondering
Guest

Hi Emad

Wbc inreasing injections can help instantly, no chance to get prescription?

Emad
Member

Yes its very easy to manage WBC with this injection , we have it and its always doing the job

but sadly there is no such injection for platelets which is our problem for now , it will take time to improve

do you have any idea on the best way to manage this ?

Wondering
Guest

Hi Emad,

I see. I read vit c can help with platelets, you might know this though.

Emad
Member

No I don’t know about this

I read about it just now after your comment , it looks helpful

I will give it to my mother and it may help

Thanks a lot W 🙂

Ergin
Member

An article about antibiotics,its effect is not only infection dependent :

For example, in lung cancers, azithromycin significantly increased 1-year patient survival from 45% to 75%, an ~1.7-fold increase [26]. Interestingly, it was noted that even lymphoma patients that were “bacteria-free” benefited from only a 3-week course of doxycycline therapy, and showed complete remission of the disease [27]. These results suggest that the antibiotic’s therapeutic effects were actually infection-independent.
http://www.impactjournals.com/oncotarget/index.php?journal=oncotarget&page=article&op=view&path%5B0%5D=3174&path%5B1%5D=6141

Emad
Member

very interesting 🙂

Emad
Member
a very small update after 1 month of TACE , the blood counts fall down but its improving now and its good also my mother is feeling stronger and able to do her normal activity just like any normal woman in her age (age 51) maybe because its been a while since her last systemic chemo but what is concerning me and make me feel uncomfortable that she is feeling nauseated these days she used to feel nauseated when she is on chemo , but these days she is not on chemo so why is that ? is it a… Read more »
Ergin
Member

Hi Emad,
Please search for some stomach problems like ulser or bleeding etc.
Anemia causes also nausea.May be she needs hospitalisation.Sorry for giving a negative feeling but this makes you feel better.
Kind Regards
Ergin

Jcancom
Member

Emad, a suggestion: ferumoxytol. It is FDA approved for another indication so could go off label.
A phase 3 trail noted below has already been done that included cancer patients, though no mention appears to be made
about any anti-cancer effects. Another article below talks of how applying a magnet to the skin of mice increased the
response with another magnetic cancer treatment. Best Wishes.

https://med.stanford.edu/news/all-news/2016/09/iron-nanoparticles-make-immune-cells-attack-cancer.html
https://www.nature.com/nnano/journal/v11/n11/full/nnano.2016.168.html
https://www.medgadget.com/2016/10/tumour-associated-macrophage-polarized-anti-cancer-phenotype-ferumoxytol.html
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4225478/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5144894/

Emad
Member

This is interesting and worth trying as its very easy to apply

I thought iron may feed cancer but these studies suggest it may lead to immune response against cancer

I will add it when i make sure that our strategy now is not enough

thank you always Jcancom

also best wishes to you

Jcancom
Member

Emad, there are so many of these approved drugs out there that can be re-purposed.
Reducing metastatic potential could be beneficial.

I hope my suggestions are helpful to you.

https://www.sciencedaily.com/releases/2016/12/161216114145.htm
https://www.nature.com/articles/ncomms13297

Emad
Member

I wonder why there is not that much statistics on using them with animals , it shouldn’t be that hard to do such test

they are promising and accessible but don’t have much attention

hope to see more news about them soon

of course its helpful suggestion like always 🙂

Ergin
Member

We used iv iron and iv sulphur for some months but we didnt see any good responce.

Jcancom
Member

Ergin, the ferumoxytol is a nanoparticle formulation of iron.
It is confusing, though different forms of iron likely have different clinical effects.

Jcancom
Member

Emad, yes it is so frustrating!

Whenever you see these off label results you typically never hear about them again.
There probably are few pharmas that would be willing to spend money on something that is
beyond patents.

You just need to be aware that some of these do not have a marketing department behind them, yet might be of some help.

Emad
Member

yes it is frustrating

this is our world and how it is functioning unfortunately

Alex
Member

I just wanted to express a personal theory that may very well be wrong. SO PLEASE take this with a big chunk of salt.
“tumor markers are not to be used as an indicator of tumor size but only as an indicator of it outputting antigen in higher or lower quantity, mostly due to slower or faster metabolism”.
Alex

Emad
Member

I totally agree , its like that

Ergin
Member

Alex how is your mom and how are you?
I miss talking with you on skype.
I am lost for some weeks i know.
But i had to do it for myself, a period without searching and far from thinking cancer.
I hope she responded well to chemo.
And i hope you understand me.

Alex
Member
I understand you brother. It is very hard for my mother and i as well. Life can sometimes seem like a living nightmare sadly. And even more sad is that so many of us go trough this. You know well i can keep on adding. Soon another chemo cycle, maybe avastin next to it. To be honest i don’t even know if it’s worth doing the markers or other independent testing, in the end my mom has to feel better, we are in a condition where independent tests won’t do much, she has to get better a bit or more,… Read more »
Emad
Member

Dear Alex and Ergin , my heart is always with you

may God help our mothers to survive this

Vasis
Member

Alex, excellent point about tumor markers! Its even more interesting because part of tumor markers (like CA 15-3) might be produced by leukocytes.

Emad
Member

Small update

my parents traveled today to Germany for the next TACE

thankfully my father did manage to get the visa for 2 more years for both him and my mother

also managed to get some help from the government to continue doing more TACE sessions

in Friday July 21 at early morning , they will do the second TACE , and they will see the results after 2 months from the first one

I’m a little bit worried , but I hope its fine

I will share the results as soon as it comes

Emad
Member

New Update :

according to what I did hear from my parents until now that there is 10% improvement since the last time (May-22)

my mother did finish the second TACE

my father will talk with prof Vogl in details

Meech
Member

10% is much better than nothing. Another good thing about it is that the chemo should arrest the growth of the tumours for a period.

After I finished my liver embolization of four tumours from April to August, the November scan showed no new growths. So three months at least I was good. Unfortunately, in March the CT showed six new tumours in the liver, all under 1cm.

If nothing else, it buys you more time to look for more treatments, and that’s always valuable.

Emad
Member

yes its more about buying time to find better solutions

and indeed its a very valuable time to buy, if things did continue to get worse like before TACE , perhaps my mother wouldn’t made it to now

but with this now we have much more months , we can focus more on what to do next

————

btw , how things going with you after you stop Sef-chemo ? hope you are managing things like you always doing

all the best

Meech
Member
Time is always valuable 🙂 keep the hope. In general I have been worse since SEF chemo. My hemoglobin hasn’t recovered and it’s been two months. I already have orthostatic tachycardia due to nerve severing during surgery, and having low hemoglobin makes it hard to stand for more than a few seconds or to climb stairs. I have to see about an EPO injection or a transfusion. I developed a slight edema in my left leg, which I assume is from a tumour compressing a vein, but that also makes it a bit harder to walk. I got sick and… Read more »
Jcancom
Member

Emad, I am so happy for you!
TACE seems like a great procedure.

Emad
Member
Hi Jcancom thank you always for your feelings , I should be happy that you are always here with us , and especially helping me a lot unfortunately can’t be happy for now , I’m worried about my brothers Alex and Ergin , no way to feel happy until their mothers feel better , also the same for Pouya I wish he feels better one day soon this is the world with cancer , we should do our best before time is up ——————- regarding the results after TACE , I did administrate 15 3-BP IV and 7 Salinomycin IV… Read more »
Ergin
Member

Dear Emad,
May be it is not a miracle but it gives you lots of months to try other treatments.
Stable is also a good thing for us.Thats not we want ofcourse but we must think like that.
For me,you did a great job.And you will.

Emad
Member

Thank you always Ergin

I wish if I can help you just like how greatly you are helping me

we did face a hard times , but will not stop doing new things and new strategies until we both save our mothers

ALBERTO
Guest

Dear All, I would like to share good news. Marker CA125 drop to normal after 2 cycles of Taurolodine. We got our aim: to start the vaccine cocktail under normal condition. I will update with or experience in Germany.

Best wishes
Dr A Hernandez

Ergin
Member

Dear Dr Alberto,
Thank you very much for sharing the results with us.Very good news thanks.
Kind Regards
Ergin

Emad
Member

Excellent news Dr Alberto

really i need to understand more about the protocol you did

hope to always here good news from you

ALBERTO
Guest
Hi Emad I have already wrotten before but in summary, my sugestions are: Do a sensitivity test, so you can use the most active substances against the tumor. iv is the better route. Do the therapy in cycles. be aggressive but always always use the right substance. Not which is good for one person is good for another one. In our case, we did the sensitivity test, and try to give iv the substances more active. We did a molecular study with the NEw generation system, and we developed an specific vaccine for our specific mutations. Then leave your body… Read more »
Emad
Member

thank you so much Alberto

one more question , did you test for Taurolodine before to see if its effective ?

also is it possible to share the source that you did use ?

always wish to hear good news from you

Kind regards

Alberto
Guest

HI Emad, yes we tested before the sensitivity, there r different companies as Maintrac, Bojar, in Germany and also in Greece there is a famous one. Pick it up one and do it, do not work blind.
Best wishes

Emad
Member
Hi dear friends in this website, I miss you all sorry for not being around too much these days , the internet connection and electricity is almost off most of the time these days in Libya Last update : the results after second TACE are better than the first one and what we did is : TACE + Sal + 3-BP, no systemic chemo the past 2 cycles are done in the right side of the liver , but this time prof Vogl decided to treat the left side of the liver i don’t know if its normal but this… Read more »
Hectoria
Guest

Hi Alberto,
What kind of treatment are you having in Germany. Is it a vaccine made from blood? Also, I would be most interested to hear about your wife’s experience, both with taurolidine and with the vaccine and treatment in Germany. This is something I considering too and would love to hear how it went. Thanks..

Alberto
Guest

Hi, we did from the Parafin tumor sample. Vaccine is ready, so we start treatment next month. WBW

Ergin
Member

I am very happy that my name is not Alberto.
https://youtu.be/BGBM5vWiBLo

Ergin
Member

Tomorrow i ll give you a link about a chemo sensitivity test.Everything ll be clear for all.

Ergin
Member

Please Alberto,
Do not play with our senses.Do not try to be popular.Look how Emad tries to save moms life.It is not a game.He began MG,not a joke.
Be a man like a MAN like Daniel.
Be brave.
Make me to apologise from you in this website
Do not talk like a puzzle please.

ALBERTO
Guest

What are you talking about? why you are talk to me on this way?

ALBERTO
Guest

Ergin, I will inform Daniel about your behaviour. Its completely inapropiate

Ergin
Member

Off Dear Alberto,
I mixed Your name with Halabe.
I am very sorry about this.I respect you and your work too much ofcourse.
When i see his name on Emad ‘s page i totally became a different person.