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Topics: 0 / Replies: 93
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RE: TNBC / testing strategies in a NED situation

@chris48 Hi Chris. It's been a awhile since I posted. I am always thinking of everyone here. It was six months since Lourdes passed away. I think...

4 weeks ago
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RE: TNBC / testing strategies in a NED situation

@chris48 Hi Chris. It's been a awhile since I posted. I am always thinking of everyone here. It was six months since Lourdes passed away. I think...

4 weeks ago
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RE: TNBC / testing strategies in a NED situation

@j HI Everyone. Sadly I have to tell you my wife Lourdes passed away two weeks ago. I didnt know how to come here and tell you. Everyone here has be...

6 months ago
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RE: TNBC / testing strategies in a NED situation

@j Johan. I cant keep thanking you enough. Another good resource. I will try to use all I can to help my wife walk again. It's good most of those are ...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j hi Johan. Thanks for thinking of others. Your work is extremely helpful. Especially for people that's are very as organised.Very useful indeed. J...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Hi Johan. I was giving her 200mg of Doxycycline and 200mg Azithromycin with the IVC. Now she still takes 200mg of Doxycycline. As you know since ...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Hi Johan. I had her ammonia and lactic acid tested about a year ago. The lactic acid was high at the time. Also the magnesium tested low. I h...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Hi Johan . It amazes me how you find these research materials. I would not have conceived endostar and the hyperbaric oxygen would be able to do ...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Hi Johan. She was receiving 2 Grams in the morning and 2 Grams in the evening Thanks. Jens

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Hi Johan. I understand DCA could be the main factor but other than about 4 IV treatments she only had approximately 80grams total which is reall...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Hi Johan I did have a few references. I keep forgetting to post things that I find to help others as well. I will try to locate again. Th...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j hi Johan. I guess DCA could be a culprit. I will discontinue. You previously mentioned the combination of Metformin with Artovastin combined wit...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Thanks Johan. I think it's just the fact she is losing all mobility due to the neuropathy. I cant believe its the DCA. From what I have read the ne...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@rosed hi Rose. Thanks . We both appreciate it. We are not ready to give up. Thanks again. Jens

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j I am hoping to take her to a hospital in Bucharest. Its one of the listed hospitals Daniel mentions. We need all the luck Johan. I stopped the sup...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@jHi Johan. Thank you for that. Very interesting. I will keep updating. Thanks Johan. Jens

11 months ago
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RE: TNBC / testing strategies in a NED situation

@daniel Hi Daniel. Yes We are willing to travel tommarrow if the Hospital will take her. Please let us know how to proceed. Thank you for answe...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Hi Johans. Sorry for the silence. I need some guidance if possible. A few things. My wifes neuropathy( only Numbness) is getting so bad sh...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@manuone hi Manuone. Thanks for the information. I will research that. She has been on the Bosweilla for 5 days nows yesterday she started on 44...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Hi Johan. It's very interesting. I am almost tempted to send it to the oncologists but decided against. I think it could help s lot of pati...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Hi Johan. Lourdes is still in the hospital sadly. She is on 8mg of Dexamethasone still with no improvement. But starting 2 days ago she has dev...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@daniel Hi Daniel. Thank you for the kind gesture. I am going to start her on the Boswellia immediately. I forgot to ask Johan, in your opinion...

11 months ago
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RE: TNBC / testing strategies in a NED situation

@j Hi Johan. Thanks for mentioning Lourdes to Daniel. I had to admit her to the hospital sadly. She was not improving but getting slightly worse. S...

11 months ago
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RE: TNBC / testing strategies in a NED situation

Hi Johan. Thanks for the information. Useful. Its been a rough week with her symptoms after the radiotherapy. Lourdes has lost her sense of balanc...

11 months ago
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RE: TNBC / testing strategies in a NED situation

Hi Johan. Lourdes was scheduled for the chemo tomorrow but her platelets were low at 48. I am thinking its a side effect of the Sodium Phenylbuty...

11 months ago
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RE: Triple Negative Breast Cancer (TNBC)

@j Hi Johan. It was nice to get away for a bit from her sickness and listen. Thank you.

11 months ago
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RE: TNBC / testing strategies in a NED situation

Hi Johan. I think it went well. I managed to give her all the supplements in the radiation protocol. She only received one round of radiation which ...

12 months ago
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RE: TNBC / testing strategies in a NED situation

@j I did see that post previously. Its making me cautious. I know quite a few women that are on it and having good results. But most of them are ned a...

12 months ago
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RE: TNBC / testing strategies in a NED situation

Hi Johan. That was a typo. I meant to say Tetrathiomolybdate (TM) Thanks. Jens

12 months ago
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