STATUS UPDATEDear friends,My brother failed to rechallenge crizotinib (due to elevated liver enzymes), so we had to look for another TKI option. His o...
Thank you for the input, @daniel. We are now waiting for the Salvestrols to arrive, and we are eager to start on them. Will let the forum know whether...
Dear friends,In my quest to find complementary treatments, I have stumbled upon Salvestrols. These are a group of natural compounds found in certain v...
Thank you, @jcancom. I will take a look at this, although travelling to Mexico for treatment at this time would pose a challenge.
Dear friends,I have been in contact with prof. dr. Thomas J. Vogl at the University Hospital in Frankfurt, Germany. He has proposed this treatment for...
Dear @asafsh,Do you have any thoughts on the ChemoThermia Clinic in Istanbul? I understand you are from Turkey? Right now, my brother and I try to dec...
@finnan Thanks for the suggestion on LDN. Do you know a reliable source? I have come uponbut I do not know if it is reliable.
Dear friends,I would like to share the treatment offers from two clinics which I have been in contact with:1. Treatment plan from ChemoThermia Clinic ...
Thanks, @manuone. I guess it would be futile to eat artichokes to get enough of the relevant nutraceuticals - so one has to get the artichoke leaf ext...
Thank you, friends.Your posts have made me realize how dangerous the liver issues can be. Sometimes all my focus is on the cancer, and I forget to see...
I received my order of Legalon (silybum marianum) today from eBay. The package seems to be in Russian. Have I actually received Legalon?Am now awaitin...
Dear friends,My brother's liver counts have continued to rise despite taking half a dosage of crizotinib for one week now. ALT is now about 500, where...
Dear @jcancom,I was very encouraged by the results from the x-rays, as I then for once had a moment of hope where I could truly see things ending posi...
Dear @johan, I really hope that my brother can stay on crizotinib for as long as possible, but that hope is in the sphere of uncertainty now. If the l...
@jcancomI know I have to be strong for my brother. It is of much help to me to find support in this forum and on various Facebook groups. The medical ...
Thank you, @daniel, for the soothing words. Hopefully, by reducing the dose, we can keep the main population in control, just like you say. Indeed, t...
Dear friends,I had a tough day yesterday. Only one day after the good news, my brother got the result of the blood work, showing that his liver enzyme...
Thank you, Jcancom, for elucidating many of the complex issues and difficult dilemmas in how to approach cancer treatment. You have provided me with a...
Dear @daniel:The proposed natural supplements to counter anemia look good. We have now bought barley grass juice powder. It is so green it looks like ...
Dear @daniel, it would be great to talk to you and get some advice. We are based in Norway. The SOC of care for NSCLC ROS1 here is:1. Crizotinib (TKI)...
@jcancom:Thank you for the article. I have noticed it before, but have not had time to read it in depth. Will do it now to understand the metabolism o...
@johan Yes, I agree. Everything I have read points in the direction that this disease must be treated with a multifaceted approach to have hope of bei...
The main problem with targeted treatments is the almost certain drug resistance which the cancer develops. If we had only a way to prevent such a resi...
Thank you, @johan and @Daniel, for the valuable suggestions. Now to the task to find a way to source Cimetidine, as it is not OTC medicine here in Nor...
Correct link:
The potential of 3BP seems very promising. But I have not seen any stories of complete remission, not even from clinics which supposedly are experienc...
Crizotinib, the TKI which my brother is taking, has poor CNS protection. So I have tried to find supplements to counter possible metastasis. It seems ...
Thank you, Johan and asafsh, for your kind help.My brother recently took a blood test showing that his ALT was 114 (normal range up to 70), which was ...
I e-mailed prof. Jürgen Wolf about my question regarding whether repurposed drugs might hasten drug resistance of crizotinib. This is his reply:good t...