Dear Readers & Friends,
With a deep regret and pain in my heart I have to write this post … my sweet dear wife Mihaela Catalina Stanciu has become an angel … My treasure passed into eternity on Tuesday, October 18th at 22:25, the Netherlands and her funeral took place on Sunday, October 23rd in Romania (Drobeta Turnu Severin).
My heart is broken … she (and I) was just 33 years old in 2013 when diagnosed with cancer. We were together since the age of 21 and after so many years of marriage our love was immense. She was so beautiful and kind and would give away to others everything she had. She did her best in everything she was involved, and during her studies in Romania and the Netherlands she always had the highest grades. She was so clever … and when we went through the most difficult period of our life fighting cancer she never complained to others. Instead she tried to help others going through their own difficulties. When she had pain she did not told me, to her parents or to her brother in order to protect us. She lived her life with such an intensity … she was laughing so beautiful and so often … she could see things where I could see nothing … She saw shapes of hearts everywhere … she picked up and brought to me small stones with the shape of a heart and she showed me hearts sculpted in mountains by nature … and she was drawing for me hearts in the sand on the beach … she was the love of my life. I was dreaming her and I saw her in my mind ever since I was a child, before knowing her. God gave her to me and now God took her from me …
Some years ago I made a “deal” with God: God will help her and I will help anyone I can in this world fighting cancer as much as I can. And I worked so much for this … when I could not respond to so many e-mails from people in need around the world, I made this website so that I can help more people within the 24h/day I have (next to my full time job that was needed to continue with our own treatments). And all this time was time that I did not gave to my dear sweet wife who was always so happy if I would give hear a little of my time. It was so painful for me to stay on the computer doing all this and not spending enough time with my love … this was a constant fight in my heart and mind …
Once, I will explain in detail our journey as I have everything documented, every day of treatment. For now I will stay short: my dear wife was diagnosed in 2013 with a very rare and aggressive form of cancer, i.e. adrenal cancer. Because the medical system delayed a lot her diagnostic (we even had to go to another country for diagnostic) the adrenal tumor has metastasized to the lungs, allover the lungs and thus not operable. A 14 cm adrenal tumor has been removed but just few months latter (beginning of 2014) another 4cm tumor has occurred at the same location next to the lung challenges. The hospital has suggested that she has months to live and that there is no serious conventional treatment due to the rarity. However, they could offer a combo of 3 aggressive chemos that would extend life with a few months. Extension of life by a few months at a very low quality level was not an offer that could be accepted by my dear wife. In February 2014, we started alternative treatments in Germany at dr. Kilarski and I started researching oncology day and night. Fortunately, research was what I did during all my life and that helped me to move faster in the medical field. During this time we came across and used treatment that have shown great results and that helped us to live 3 years after the diagnostic at a high quality level.
Unfortunately we lost so much time learning and making small steps. We were some of the first in the world doing what we were doing and we had to make the steps small such that if any step would have been made in the wrong direction we could correct it. The financial situation was another aspect slowing us down. And yet another challenge was that we were not only fighting the tumor but also the hormones produced by it. The tumor was a functional one, producing high amount of hormones one of which was Cortisol, this is turn having so large negative impact on various aspects including the immune system.
I strongly believe that if we could set time back, we would have high chances to cure my dear wife. For example, Salinomycin worked so well … but the tumors were too large and when we were using Salinomycin she was feeling immediately pain at the tumor location, sometimes to much due to cancer cell necrosis (also observed in blood tests and CT). This is why we could not use it often. 3BP has always helped us and Diflunisal helped us to stop progression initiated by a treatment we tried with Immuno therapy (anti PD1).
Overall, there are so many options that can extend life or even cure c. patients. And this has been clearly demonstrated by my dear and sweet wife. There are so many options to improve current therapies including chemo and radiation. And so little is being used by the hospitals and so little known by most medical doctors. In most countries, medical doctors do not have either the time or the legal context to do more than what the “protocol” says. However, there are some medical doctors who have the capability and willingness to go beyond and help the patient.
After going through this shock that so much disrupted my life, I am thinking what to do next. I am 36 years old and feel like I have nothing else that I want to do in this life. I feel like I had everything I could wish for in a life time: All this years I had next to me the love of my life, a PhD work enabling a “Dutch Nobel Prize” that one day may be more than that, I had/have my dream job in a multi national company, and in my private life I helped many people and doctors across the world in oncology field … there is nothing else I want for me in this life.
But I know that all this time we lost with learning oncology may be of benefit to others as it may help others gain valuable TIME and (science and fact based) HOPE. I also so much understand the pain of every patient and his family going through this fight with cancer.
For all the people in need and in the memory of my dear sweet wife, I intend to start up a foundation that will have her name: Mihaela Catalina Stanciu Foundation
The activity of this foundation will be focused on
- supplying of (science and fact based) information for cancer patients, their family and medical doctors regarding strategies to improve current treatment methods and new treatment strategies
- with a focus on late stage cancers
As a side activity, the Foundation will also write reports based on feedback from patients on various subjects including results at clinics around the world and results after following specific treatments. For example, I find highly valuable to know what to expect from e.g. anti-PD1 Immuno therapy treatments that are so positively presented in the media while based on the info from various patients and personal experience shows so little results and so many side effects, and in many cases initiate tumor growth.
Therefore, once I feel a little better I will restart my activity in the oncology field to help others via Mihaela Catalina Stanciu Foundation.
As any charitable organisation, if you appreciate the type of activity and information provided, I kindly ask your support the activity of the foundation via the PayPal donation button located on the right side of this page. Every donation will matter for the continuity of this activity. Once I start up the Foundation, I will make visible all the donations and the related expenses on this website. The goal will be for me to be able to allocate all my time to the Foundation (while today I have to allocate that time to a full time job not related to cancer) and possibly one day have other colleagues. Also, we have to realize that some of the information shared on this page has come with high costs as for example finding the way how to formulate Salinomycin for intravenous administration (very expensive and a lot lost to find the right formulation).
This is on short the story of my past, present and future.
Thank you all for your support, appreciation and positive thoughts,
Update August 9, 2018: to understand what we were fighting with in terms of typical survival see the figure in this PhD thesis, page 12 https://edoc.ub.uni-muenchen.de/22403/7/Jung_Sara.pdf or this article https://academic.oup.com/annonc/article/26/10/2119/144653