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Before going for surgery ask for the tumor to be stored frozen, for future Immunotherapies


Daniel
(@daniel)
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One very important point to remember before going for surgery is to make it very clear to the surgeon that you wish to store frozen tumor tissue for future immunological therapies. 


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Alex
 Alex
(@snake)
Joined: 4 years ago
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Yeh, too late now... 🙁

Many like my mother and i have rushed to the doctors without adequate reading before.

The doctors were meant to inform, treat, help, consult etc. They only did a little treating. *cutting*.


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Daniel
(@daniel)
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I also didn't know in advance Alex. Yet, the hospital did stored some frozen samples due to the rarity of the tumor type. I am not too late as some people may come across this msg, prior to the surgery. Some people have the time to study prior to the decision.


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Alex
 Alex
(@snake)
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i wasn't questioning your timing Daniel. Obviously it's never too late to save lives.

It is however very sad that the medical establishment doesn't apply it's own latest discoveries in the best interest of the patient, to actually save more lives.

Would have been very nice if the medical establishment would have educated us or even better, would have made the best choices for us, the actual best choices, not the financially most beneficial choices for them, or time saving shortcuts etc.

Anyway, i'm blowing steam for nothing now.


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Daniel
(@daniel)
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I know you were not questioning that Alex. The medical establishments are not aware of the recent developments + even if they would if it is not yet part of the protocol they can not recommend + immuno therapies using frozen sample are not yet proven to be effective + cost are high so they may not be covered even if there are no other options ...


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josiane
(@josiane)
Joined: 2 years ago
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Hi, I am a 63 y old woman from Belgium and i am a clinical laboratory analist. In 2015 I was diagnosed with dedifferentiated retroperitoneal liposarcoma so on 3 nov 2015 they removed the huge primary tumor ( 8 kg) and i lost left kidney, spleen, tail of pancreas, part of intestines. I had a recurrence and second operation in nov 2017 and now in march 2019 I had my third operation. I asked the surgeon to freeze my tumorsamples in order to make a xenograft. They received a big budget of money from the organisation Kom op tegen Kanker in order to do that but they have not yet started their tests on mousse and will not do before 2020 ! I did an RGCC test in order to detect which chemo is the most sensitive for me and they said gemcitabine. The last scan from septembre 2019 shows again recurrence so I have started gemcitabine but since 10 sept I also started the Joe Tippens protocol. I have the gemcitabine on friday and so i take the panacure (= fenbenazole) on sunday, monday and tuesday because i must stop 3 days before next gemcitabine treatment.I had neutropenie but i take cats claw , astragalus and cimetidine so it was okay but now i had a shot with lipifilgrastim ; i read that licorice may be also good for neutropenie, is that correct and when does i have to take it? I would like immunotherapie but my tumor is MDM2 positive so checkpointinhibitor nivolumab may cause hyperprogression. I read a lot of Pubmed articles and saw that all the sarcomas have GD2 and this can be targeted by monoclonal antibodies anti- GD2 in immunotherapie ; Does someone knew more about this? Thank you for reading my e mail 


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Daniel
(@daniel)
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@josiane

Dear Josiane,

Thank you for your msg. Regarding licorice, I would indeed expect to help against neutropenia based on the scientific articles I shared here https://www.cancertreatmentsresearch.com/community/anemia-treatments/preventing-chemotherapy-induced-myelosuppression-with-licorice/#post-1240
The idea is that FLT3 inhibitors such as those present in licorce are suppressing the proliferation of bone marrow cells, while tumors are proliferating at their normal rate. Since chemo affects the more active cells, the bone marrow cells will be less "visible" to the chemo as they are slowed down by licorice. This is why I would take it before chemo.

Gemcitabine is a weak base so alkalizing treatments prior to Gemcitabine may help increase the anticancer effectiveness. Here is more about this concept https://www.cancertreatmentsresearch.com/ph-cancer-a-top-treatment-strategy/

Using bicarobonate intravenous one day before chemo and continuing with oral bicarbonate (such as Basentabs found online) throughout chemo may be the easiest way to implement this. But adding the other frugs and supplements discussed at the link above will make the approach stronger.

Please also read this https://www.cancertreatmentsresearch.com/summary-of-this-website/

About GD2 I would need to read more.

Kind regards,
Daniel

 


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NA
 NA
(@j)
Joined: 3 years ago
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@josiane

ashwagandha could also help with neutropenia

https://www.ncbi.nlm.nih.gov/pubmed/11480235

 


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josiane
(@josiane)
Joined: 2 years ago
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@daniel

thank you very much for the information. I rinse my mouth with sodiumbicarbonate and before sleeping i drink a little bit of the solution.

I drink some tea with licorice.

Thank you very much Daniel


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josiane
(@josiane)
Joined: 2 years ago
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@johan

Thank you for the information

 


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