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Radio embolization vs chemo embolization


sirsna
(@ieva-berzagmail-com)
Joined: 5 years ago
Posts: 16
Topic starter  

Hi to all dear friends!

For Breast cancer  TNBC multiple HIPOvascular liver mets which one would be more better choise :

1. radioembolization with microspheres, which are filled with the radioactive isotope yttrium Y-90

2. chemoembolization

ALT, AST, GGT within norms.

 

ieva


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sirsna
(@ieva-berzagmail-com)
Joined: 5 years ago
Posts: 16
Topic starter  

Ergin, sorry, I did not cacth Your idea. Are You writing :

1) that You will talk about treatments only with Emad? ok, that`s Your choice. I do not ask You anything.

2) that You would use only Phlorizin, if You were in my shoes or other cancer patients? You will never know how cancer patients feel. I am sticking to every possible treatments option and I do not have to invest my life only in Phlorizin. I need also variant B and C. If I could get Phlorizin and find the way to implement in my blood system, I would use it as other medicaments I am using. 

And, please, stop thinking that I am hating You, I do not have so much energy and my mind is not build in that kind of mind and energy wasting as hating something. 

In fact, If I look back in our communication, I just remember Your strong point, that all advanced patients will die. Is this that truth You will stop talking? Don`t You really thing that there can be way to prolong life without Phlorizin?


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Tugrul
(@tugrul)
Joined: 4 years ago
Posts: 3
 

Hey chill out a little bit, okay? ? 

I am new here and till I understand everything and suck all your brains out, noone going nowhere!

First of all, what is Phlorizin? (According to Wikipedia, it is found primarily in unripe apple)

Could you please tell me where did you get the idea that Phlorizin is theee one and only substance we should use against cancer? Let's see some supportive pubmed papers first (and forgive my ignorance please).  🙂


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Daniel
(@daniel)
Admin
Joined: 6 years ago
Posts: 1039
 

Dear Ieva,

Regarding your question, you have to see what you feel is better for you. Note that my view may be biased by the info I have available. However, based on that if you would ask me what I would have recommended to my wife I would go for chemoembolisation (TACE). I do know people who succeeded to see very good results after TACE including complete remission of liver tumors. On the other hand I do know people who saw complications and even more spread of cancer after radioembolisation. Regardless of the choice, I would make sure I would go for a doctor that is well recognized in the field  such as prof Vogl for chemoembolisation performing many such interventions/day and as a result having extensive experience. Others can easily make mistakes.

Regarding the discussion between you and Ergin: everyone has his own story and his own perspective on life and everything around. It is our choice what perspective we take and to whom we like to listen to and to whom not. I prefer to guide my life based on positive references. That is what I am trying to do with this website. If you go through references in various posts I wrote, you will find many successes coming from allover the world and reported in scientific journals. Off course all people will die at some point regardless if we are cancer patients or not. The father of a friend of mine had an aggressive cancer and his doctors said he will soon die. More than 10 years latter, his father is still alive and well while his doctor is already death. The point is that life is complex. Some people may respond to treatments and others not. Some people may survive very long by not doing anything and others will survive very long by doing a lot. And the other way around. We succeeded to extend life of my dear wife by a few years with new treatments. I have a friend who was totally in remission after DCA. So it's possible. We do not know everything. We are trying to learn and we will know more everyday. But we can do that only by having hope and expecting the best, while acting to the best of our knowledge. That is the only way forward in my view.

One advise to all: use the positive info to gain hope and ideas, use the negative info to learn from, but all the info and discussions on this website should be only input next to discussions with doctors etc. Do not base your decisions just based on discussions on this or similar website. Like Ergin said, we are not oncologists here. Just some friends, researchers, using the power of communication to learn and share knowledge and experience.

Kind regards,
Daniel

 


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Daniel
(@daniel)
Admin
Joined: 6 years ago
Posts: 1039
 

Hi Tugrul, 

If you search this website, you will find a post on Phlorizin.

Kind regards,
Daniel


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Tugrul
(@tugrul)
Joined: 4 years ago
Posts: 3
 

Thanks Daniel.

First of all, I am truly sorry for your loss. Some time ago I was reading (never participated) your long 3BP discussion on another forum. Then you decided to set up your own web site with some members from that forum. Then I visited your website couple of times to follow up but it was probably a year or more ago. In grief, I read your loss, yesterday. I just want to say that you did your best.

My question (actually wast not a question, but gratuitous mediation between Ieva and Ergin, which was not really necessary) was not directly regarding to phlorizin (I read nothing but a research paper and a summary of a patent) but Ergin's sad reaction towards it. Because it may be unripe to start eating unripe apples and put all the eggs to that basket (as Ergin mentioned). This is just my current thought, of course.

By the way, could you please inform Ergin to contact me? From his name, I am guessing that he may be my compatriot. If so, I will be very glad to talk to him and share knowledge and even possibly in our own language.


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Daniel
(@daniel)
Admin
Joined: 6 years ago
Posts: 1039
 

Thank you Tugrul. If the info you like to share with each other is not personal but technical, would be best to create a new topic yourself within the Forum, and speak there your own language. It may be useful for someone in your own country. In any case, I will now send an e-mail to Ergin with your e-mail address (indeed Ergin is from Turkey).

All the best,
Daniel


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sirsna
(@ieva-berzagmail-com)
Joined: 5 years ago
Posts: 16
Topic starter  

Thank You, Daniel for positive and correct post!

I talked to radiologist who performs chemoembolization in my country, he offered 2 possibilities : chemoembolization or radioembolization. If chemoembolization, then only with systemic angiogenesis inhibitors (because of other mets outside liver). Radioembolization is something new they want to introduce in my country.

Theoretically, if mets are hipovascular then radio would be better than local chemo?

 


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sirsna
(@ieva-berzagmail-com)
Joined: 5 years ago
Posts: 16
Topic starter  

Hi, Ergin !

No, I do not take Dapagliflozin (I tried it for few days, but my body could not hold them, as I wrote, I had severe edema). I still take metformin, berberine, simvastatin, mebendazole (as angiogenesis inhibitor), aspirin, dipyridamole, Zoledronic acid, omeprazole, Basentabs. Few days ago finished systemic chemo (I think it helped to stop fast progression in bones as no new lytic mets appeared). I am not sure about situation in my liver as no new scans are done. But after 3th chemo liver mets were stabile. Previously I had very fast progression in liver from no mets in March 2017 to multiple mets in Oct 2017. My blood marker ca15-3 also dropped from 260 to 30. I am nnow in search for good maintenance therapy. 


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sirsna
(@ieva-berzagmail-com)
Joined: 5 years ago
Posts: 16
Topic starter  

Btw, dipyridamole should be weak GLUT inhibitor


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Daniel
(@daniel)
Admin
Joined: 6 years ago
Posts: 1039
 

HI Ieva, I would not rely much on MBZ as an angiogenesis inhibitor. While is doing that I bit, it's main strength are related to microtubule inhibition.

I discussed other angiogen inhibitors that are more powerful such as TM.


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Daniel
(@daniel)
Admin
Joined: 6 years ago
Posts: 1039
 

I totally recognized what you are saying Ergin. And that is amazing ... so many people loosing so much time wondering around instead of going to action. So you are totally right! Somehow that is how most of the people on this planet are acting, in general not only in oncology. Going to action is so important in life and extremely important in oncology. That is why we should not do more than exposing option. If people are interested and driven, they will ask more questions. If not, you can use your time and energy for something better.


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Tugrul
(@tugrul)
Joined: 4 years ago
Posts: 3
 

Don't get offended.

You are both mistaken. Only smart people lose time. No matter what the result is, average Joe acts faster. I have been reading such documents, research papers and patents for 6-7 years after my wife's cancer case. And I will continue doing it all my life. Do you think you are average? "Normal" people never do this way. It is a psychological fact. And that's why you are both mistaken to generalize it. It is only your mistake. Sad, but true.

Metallica - Sad But True :

https://www.youtube.com/watch?v=A8MO7fkZc5o


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Daniel
(@daniel)
Admin
Joined: 6 years ago
Posts: 1039
 

Hi Tugrul.

No offense off-course. I actually like debates since only those help us evolve and sharpen our views. Just that I expect those who enter debates, to also be informed and discuss based on facts and references. Otherwise anyone can state anything. Reference to a song doesn't help in this case, although I like Metallica.

My point of view is actually developed after interaction with many people + statistics on this website. That doesn't apply to all off course but to many. Yet, I understand it could be biased. Just to be clear since we are discussing in this space initiated by Ieva, I am not referring to her as she is doing a lot. 

You've made a reference to myself and my response is simple: from your statement I realize you haven't read many posts on this website to understand the efforts some of us did to help our love ones. There are many examples on this line but it doesn't help anyone getting in to that.

What would help instead is if you would share with us your findings after researching cancer and treatments during all these years. What are your most relevant findings in terms of effective treatments? 

Kind regards,
Daniel


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Daniel
(@daniel)
Admin
Joined: 6 years ago
Posts: 1039
 

Hi Ergin,

I have energy to work on more than Phlorizin at the same time 🙂 and soon will also have the time. I will be glad to hear any good news you may have related to it. Also, maybe you have ideas about how we could find ways to support it's implementation in more clinics (where it is allowed)?

Maybe I should start up a website with private access, where I write down in details various treatment protocols, and where I invite medical doctors and scientists to join in, pick up info and discuss various treatments and results ... I could start with those I am already in contact with.

Kind regards,
Daniel


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nsturdevant
(@nsturdevant)
Joined: 1 year ago
Posts: 6
 

@daniel

How can I contact Prof Vogl


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Daniel
(@daniel)
Admin
Joined: 6 years ago
Posts: 1039
 

@nsturdevant Here is his email address: [email protected] 


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