@abidingtoday sorry no. I am going to look for that information on spirulina.
@abidingtoday sorry no. I am going to look for that information on spirulina.
can't seem to find it but here's some other information on why spirulina might be best avoided
https://nutritionfacts.org/2014/04/29/toxin-contamination-of-spirulina-supplements/
Also, I think you said your mother is on a low-carb diet and diarrhea is also a common side effect of low-carb diets.
@abidingtoday sorry no. I am going to look for that information on spirulina.
https://www.sciencedirect.com/science/article/pii/S2221169115000696
A massive reduction in the total, free testosterone and progesterone was recorded (75.7%, 72.9% and 32.9%, respectively) compared with the untreated mice.
@j thank you. I’d like to read if you can find out why spirulina is ill-advised. I thought chlorella was practically the same thing. I am seeing sacchraomyces boulardii recommended as a binder. Do you have thoughts on that?
@abidingtoday may I ask why do you want to use spirulina as a binder, is it for detox? There are other safer options like modified citrus pectin, parsley (wonderful herb!), activated carbon ....
As for saccharomyces boulardii, from what I've read I think it's safe to use. But probiotics are so expensive and don't really seem to alter the microbiome in the long run. Personally, I prefer a healthy diet with a variety and abundance of fiber sources over this type of supplement.
@j she is doing a really healthy diet. Is chlorella also dangerous, do you think? I thought those over pectin because I think this is an aflatoxin mold infection. We are still waiting for stool test results. I would like to do pectin if that would work for aflatoxins?
@j she is doing a really healthy diet. Is chlorella also dangerous, do you think? I thought those over pectin because I think this is an aflatoxin mold infection. We are still waiting for stool test results. I would like to do pectin if that would work for aflatoxins?
I think Chlorella is safe to use, but there is probably little benefit from using it, in cancer.
Activated carbon will help with this type of infection
https://pubmed.ncbi.nlm.nih.gov/6782748/
https://www.greatplainslaboratory.com/gpl-blog-source/2021/20/mycotoxinbinders
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6642017/ Is high vitamin B12 status a cause of lung cancer?
Lung cancer is not the only type of cancer that seems to thrive with higher levels of b12.
That's why I'd be reluctant to use Chlorella in cancer as it has quite a high amount of b12.
@j do the same things apply to “alginates”? PectaClear has alginates and PectaSol…
@j do the same things apply to “alginates”? PectaClear has alginates and PectaSol…
Pectasol is a good product but I don't know about the alginate complex, it's new to me.
So, she actually has C DIFF 🤦🏻♀️🤦🏻♀️🤦🏻♀️
I’m pretty upset about this. Can it be caused by mold? This is… bad.
So, she actually has C DIFF 🤦🏻♀️🤦🏻♀️🤦🏻♀️
I’m pretty upset about this. Can it be caused by mold? This is… bad.
I don't know. Maybe she caught it in a hospital visit? Hope she gets well soon!
So, she actually has C DIFF 🤦🏻♀️🤦🏻♀️🤦🏻♀️
I’m pretty upset about this. Can it be caused by mold? This is… bad.I don't know. Maybe she caught it in a hospital visit? Hope she gets well soon!
Then she got blood tests back last night with super high TSH (18.5)
https://jnm.snmjournals.org/content/55/supplement_1/1922 According to our results, an increase in TSH levels seems to cause an increase in PTH levels / overactive parathyroid gland / hypercalcemia
Add to that the underlying condition and possibly too much vitamin D? Have you checked her D levels, you mentioned she is taking 6000IU
Randomly and unrelated, we are expecting blood test results with D3 levels any day (or moment) now.
On-call oncologist did say this could be brought on by immunotherapy-induced colitis. It is not the same thing as C Diff; but C Diff is a type of colitis and all the people in this (small) study who had immunotherapy-induced colitis also ended up having (or getting) C Diff: https://pubmed.ncbi.nlm.nih.gov/31107370/
The timing of when this started was exactly the timing for immunotherapy-induced colitis in relation to time after number of treatments/last treatment.
I don’t know if it would be related to mold at all, or if that was just a nasty coincidence.
Maybe her immune system got too revved up by the Vitamin C, in addition to what the immunotherapy was doing. I don’t think we will continue that.
In any case, we’ve been advised by new integrative cancer consultant to stop all protocols for about 7-10 days while taking antibiotics - but to keep taking the probiotic once daily. Then they are going to review protocol for us and pare things down and possibly add a few of their own things.
I’m just — I don’t know. This is a lot.
Randomly and unrelated, we are expecting blood test results with D3 levels any day (or moment) now.
On-call oncologist did say this could be brought on by immunotherapy-induced colitis. It is not the same thing as C Diff; but C Diff is a type of colitis and all the people in this (small) study who had immunotherapy-induced colitis also ended up having (or getting) C Diff: https://pubmed.ncbi.nlm.nih.gov/31107370/
The timing of when this started was exactly the timing for immunotherapy-induced colitis in relation to time after number of treatments/last treatment.
I don’t know if it would be related to mold at all, or if that was just a nasty coincidence.
Maybe her immune system got too revved up by the Vitamin C, in addition to what the immunotherapy was doing. I don’t think we will continue that.
In any case, we’ve been advised by new integrative cancer consultant to stop all protocols for about 7-10 days while taking antibiotics - but to keep taking the probiotic once daily. Then they are going to review protocol for us and pare things down and possibly add a few of their own things.
I’m just — I don’t know. This is a lot.
IMO but I'm not a doctor, the increase in TSH and possibly PHT, I think, rather indicate an impaired immune system, not a revved-up one. But I would also stop everything until this is resolved and well understood what actually happened or is happening. Because of her condition your mother had a high risk for this type of infection anyway.
Too much zinc and c diff
https://www.mysouthernhealth.com/excess-zinc-worsens-c-diff-infection/
sorry PTH, not PHT
In any case, we’ve been advised by new integrative cancer consultant to stop all protocols for about 7-10 days while taking antibiotics - but to keep taking the probiotic once daily. Then they are going to review protocol for us and pare things down and possibly add a few of their own things.
I’m just — I don’t know. This is a lot.
If you have a good integrative cancer consultant it might be best to let them design the protocol for you so you can spend time with your mother rather than studying and worrying. As someone said recently here on the forum, there are many rabbit holes to go down!
@abidingtoday I mention butyrate a lot, it's central in my own protocol if I can call it that.
Butyrate Protects Mice from Clostridium difficileInduced Colitis through an HIF-1-Dependent Mechanism
https://www.cell.com/cell-reports/pdf/S2211-1247(19)30384-5.pdf
I had actually just increased the butyrate and adjusted some things and her stools have been normal for over 24 hours, though her stomach still hurt a bit. She wants to do the antibiotic though and I have to agree. This is a serious infection. We just got CBC back as well and eosinophils were off the charts.
If you have a good integrative cancer consultant it might be best to let them design the protocol for you so you can spend time with your mother rather than studying and worrying. As someone said recently here on the forum, there are many rabbit holes to go down!
Yes, I’m hoping they can help. It remains to be seen. I wouldn’t mind a break. I’m kind of exhausted.
I had actually just increased the butyrate and adjusted some things and her stools have been normal for over 24 hours, though her stomach still hurt a bit. She wants to do the antibiotic though and I have to agree. This is a serious infection. We just got CBC back as well and eosinophils were off the charts.
Good to hear she is doing a bit better. She needs to do the antibiotics course,yes. It takes a while to increase butyrate, tributyrin is a good supplement to help achieve that but diet is very important, you need plenty of fiber. You mentioned your mother was on a low carb diet and such a diet may reduce butyrate production.
@j she may be starting keto-lite soon. More of a Mediterranean-Keto, not so high on fat as normal keto, but more than she has been having; including some red meat (a little, grassfed and grass finished) as well as some grassfed/finished dairy; so good fats, good proteins, some good carbs but not too many… I’m really praying for wisdom about this. Diet as you know is so controversial. I think you sent that conversation you were having in a link, I need to go find it and look at it.
it is a setback but don't let this discourage you, you have done so much in very little time. Your mother seems like a strong lady, and I sincerely hope she regains her health soon.
Going forward, if you'd like to get my thoughts on something please don't hesitate to get in touch via my blog. I won't be spending more time here as I no longer agree with the way Daniel runs this website. Recently some of my posts to the forum have been deleted, when I was just posting abstracts of studies, not an opinion. It's disturbing. And there are other problems. So I have decided that if I can't speak freely here I can't continue to be a contributor.
Anyway, I am happy to hear your mother seems to be getting better, I was worried!
Kind Regards,
Dear @abidingtoday,
I just scanned through the discussion and not sure if I understand the situation exactly, but I understand you are dealing with C Diff now.
One of the best solutions to this (which may end up being a solution to cancer as well) is fecal transplant. I know someone here in the Netherlands whose life was in danger due to C Diff. Always after antibiotics, C Diff would come back in his case. The (academic) hospital proposed and performed fecal transplant from child to parent and the man was saved. You may want to ask the doctor about this option.
Kind regards,
Daniel
